Jackie Blue: Detroit Band Raises Awareness of Hypothalamic Hamartoma Disorder by Holding Benefit Show for Three Year Old Austyn Chalifour

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Jackie Blue is bringing together musicians and the community to raise funds for three year old Austyn Chalifour in metro-Detroit. "Austyn has been diagnosed with a rare brain tumor called Hypothalamic Hamartoma and we need to raise money for his much needed surgery," says Carrie Firth, lead singer of Detroit based rock band Jackie Blue.

Austyn Chalifour. This full of life three year old is in need of major brain surgery. Hypothalamic Hamartoma (HH). A big name for a simple condition: A benign tumor is intertwined with Austyn's hypothalamus (brain area that controls breathing and other basic body functions) and his optic nerve.

It's the surgery that's the problem. How do you remove the tumor without killing or blinding Austyn?

According to experts at both the Cleveland Clinic and the Hypothalamic Hamartoma Support Organization, without the surgery Austyn faces Gelastic (laughing) seizures, sometimes tonic-clonic and drop seizures, "hypothalamic rage" behavioral problems, and frequently, precocious (early) puberty. Some people with HH are also affected by Pallister-Hall syndrome, an extremely rare genetic disorder.

Carrie Firth, lead singer of Detroit based rock band Jackie Blue, regularly works with children who experience seizures as a regular part of their lives. Firth says "We're bringing together musicians and the community to give Austyn the money so that he can have his needed surgery and we hope that you'll join us for this great show."

The Austyn Chalifour Benefit Show

7:00pm, Thursday, May 19, 2005

Token Lounge, 28939 Joy Road, Westland, Michigan

Performances by: Jackie Blue, Zuby, DJ Litmus, Wisteria, Bullets for Breakfast and DJ Floss

Additional information: http://www.JackieBlue.com

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