West Hills, CA (PRWEB) January 28, 2006
Getting a diagnosis of Rett Syndrome for your daughter is a life altering event. The new book, "Your Daughter Has Been Diagnosed With Rett Syndrome" tackles first hand reactions, next step instructions and coping mechanisms in dealing with a diagnosis of Rett Syndrome. Part of the proceeds of the book sales go to Rett Syndrome research. One out of every 15,000 girls born have Rett Syndrome. Males born with the Rett gene generally die at birth. Rett Syndrome is often mistaken for other syndromes or conditions. It is not uncommon for girls to go their entire lives without getting a correct diagnosis.
The parents or grandparents as primary caregivers must learn to plan and take care of themselves as well as their Rett daughters. Long term care projections, time management and diet are important issues as well that caregivers must address.
"This was something that had to be done", says the author. "I was approached by a lot of newbie Rett Syndrome parents and there were a lot of feelings and misconceptions that I already had dealt with. Anything I can do to help ease human suffering works for me."
The author will be making donations to Rett Syndrome research from part of the sales proceeds. "It would be great to find a cure for Rett Syndrome in my lifetime. For that to happen, it needs money to attract good researchers."
The book will be available through Amazon.com, Amazon.uk, Barnes and Noble, Daltons and other major book chains through the United States and United Kingdom.
The author, Kim Isaac Greenblatt, lives with his wife, Sharren, son Jacob and daughter, Arianna. Arianna has Rett Syndrome.