(PRWEB) March 27, 2007
Many people always dream of never being able to feel pain. A life without pain opens up endless possibilities to explore this world in ways only seen in comic books and movies. There is a young boy named Roberto who is living a life without pain, but his life is not the dream that many believe. Roberto has a genetic disorder called Congenital Insensitivity to Pain with Anhidrosis (CIPA). Help Roberto, located at the newly launched http://www.helproberto.com, is the website and identity developed for Roberto.
A child with CIPA cannot feel pain, cannot regulate his body temperature, and cannot feel other extreme sensations necessary for a regular life. While teething, Roberto chewed on objects, including his own hands, so much that he lost most of his teeth. Roberto walked on a broken foot for days, not knowing the damage he was doing to himself. Doctors suggest that Roberto will be in a wheel chair by age 10, due to the wear and tear he unwittingly puts on his body. When Roberto was an infant he simply stopped eating because he doesn't feel hunger, and for years Roberto ate through a feeding tube.
The rarity and uniqueness of CIPA have lead it to be featured on ABC's medical drama 'Grey's Anatomy' as well as Fox's 'House.' Currently, there are only 17 other CIPA patients in the United States. Most children with CIPA die by age 3 due to overheating. Roberto is at an elevated risk for overheating because he has also been diagnosed with hyperactivity. Precautions have to be made to keep Roberto's body temperature under control, he can't be in direct sunlight for too long and he can't run around, acting like a normal 5 year old for too long either. In fact, the local school system cannot transport Roberto to school because their buses aren't air conditioned.
For additional information on the Help Roberto campaign, contact helproberto @ gmail.com or visit http://www.helproberto.com.
helproberto @ gmail.com