La Crosse, WI (PRWEB) October 27, 2007 -
Tina (34) a long time sufferer of APS from Wisconsin, and Heidi (32), wife of APS sufferer Todd (33), from Michigan began The APS Foundation of America, Inc. in an effort to bring national attention to a little understood, and often misdiagnosed condition. The APS Foundation of America was established in 2005 as a non-profit organization, solely dependant on donations and the time of volunteers, to provide much needed services to APS sufferers in the form of education, understanding, and communication.
The APS Foundation of America's website http://www.apsfa.org offers sufferers of this rare blood condition, and their families a forum in which to communicate, across America, with other families coping with the same disease. Discussions in the open forum can range from sharing experiences to little known treatments and how to deal with skeptical medical professionals.
Antiphospholipid Antibody Syndrome (APS) is categorized as an Auto Immune Disease. Simply put, the body's immune system breaks down and begins to create anti bodies that attack the body itself. In particular, phospholipids in the blood, that normally help keep the blood balanced and flowing, are thrown out of balance by the presence of antibodies. The antibodies interfere with the bloods ability to clot, resulting in excessive bleeding, or conversely create excessive clotting, resulting in either minor or fatal forms of heart attack, or TIA (Transient Ischemic Attack) - minor strokes. There are several types of antiphospholipid antibodies, the two most commonly found are Lupus Anticoagulant, and Anticardiolipin. Lupus Anticoagulant Syndrome is actually a misleading term because it does not necessarily mean the patient has Lupus.
APS is associated with Thrombosis (recurrent clotting events) including premature strokes, clots in the vein, repeated miscarriages, and blockage of an artery in the lung due to clots. APS is also associated with dysfunction of the blood that prevents bleeding, causes premature heart attack, migraine headaches, skin lesions, and cardiac valvular abnormalities to name only a few. Rarely discussed and often misdiagnosed the symptoms of APS are fluctuating and sometimes temporary. Tina recounts being dismissed by doctors as "too young for these kinds of problems", diagnosed as suffering from anxiety and a host of other ailments, and even began to take pictures of symptoms as they displayed themselves in order to prove their occurrence to skeptical medical professionals.
APS sufferers have a wide variety of problems some more severe than others. Todd was hospitalized for pleural effusion in 2000 and diagnosed with CMV (Human Herpes Virus 6) believed to have triggered the APS. He had chest pains on and off continually until 2003, when he was admitted for surgery to drain fluid from around his lungs. It wasn't until 2004, when he was hospitalized again for DVT (Deep Venous Thrombosis) a clotting in the lower legs, that APS was finally diagnosed.
The frustration of so many symptoms and so many medical professionals unaware or unwilling to diagnose APS leaves sufferers with the pain and confusion of not only the disease and its effects but with the doubt that there is anything actually wrong with them at all. But through education and awareness the APS Foundation of America hope to make APS a less rare and more recognizable disease.
The APS Foundation of America, Inc., (http://www.apsfa.org) is a non-profit agency dedicated to the education of both doctors and patients alike about the rare auto immune disease known as Antiphospholipid Antibody Syndrome (APS). Any profits made by the foundation go towards funding awareness, education, and research campaigns in the hopes of one day finding a cure. The website, dedicated to educate, inform, and advise, provides a place for American's suffering from APS and medical professionals alike to find much needed resources when dealing with this often misunderstood, misdiagnosed, and debilitating disease.
For more information on, to become an active member and volunteer for, or to talk with others about their experiences with APS please visit the foundation's official website at http://www.apsfa.org; or write to APS Foundation of America, Inc., P.O. Box 801, La Crosse, WI 54602-0801.
The APS Foundation is now being promoted online by an Internet Marketing Company that owns a Nursing Jobs Website: http://nursingjobworld.com/ .
APS Foundation of America, Inc.
P.O. Box 801
La Crosse, WI 54602-0801