Kids Wish Network Helps a Wish Come True for a Very Special Royse City Boy

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When he was just four, 15-year-old Nicholas of Royse City was diagnosed with a condition known as Cockayne syndrome. Cockayne syndrome is a very rare disorder characterized by premature aging. The condition also results in impaired growth and impaired development of the nervous system. Nicholas is extremely small for his age and relies on a walker to help him with his mobility. When asked for his one wish he knew just what he wanted to do: Nicholas wanted to go skiing in Colorado!

When he was just four, 15-year-old Nicholas of Royse City was diagnosed with a condition known as Cockayne syndrome. Cockayne syndrome is a very rare disorder characterized by premature aging. The condition also results in impaired growth and impaired development of the nervous system. Nicholas is extremely small for his age and relies on a walker to help him with his mobility.

While this engaging and outgoing teenager struggles daily with his condition, Nicholas also maintains an incredibly positive attitude. Recently, this brave boy enjoyed a very special break away from his worries for a while thanks to Kids Wish Network, an organization in Florida that grants wishes to children with life-threatening illnesses.

Nicholas's mother, Jennifer, learned about Kids Wish Network after a relative was contacted by one of the charity's professional fundraisers. The family was eager to learn if Nicholas might qualify for a wish and Jennifer requested an application. Before long, she received the good news: Nicholas had been approved. He knew just what he wanted to do: Nicholas wanted to go skiing in Colorado!

Nicholas' Kids Wish Network wish coordinator, Vanessa, quickly began working to make his wish come true. She not only secured airline tickets to Denver for Nicholas and his family, she also booked hotel accommodations, arranged for fun activities in the area, provided spending money and more. Before he knew it, Nicholas was on a plane headed to the snowy mountains of Colorado.

Soon after arriving in Colorado, Nicholas and his family checked into the beautiful Zepher Mountain Lodge, nestled at the base of the Winter Park Ski Resort. Nicholas quickly unpacked and headed out. He was ready to start exploring!

When one is in Colorado, one must definitely lean how to ski! So the very first stop on Nicholas's agenda was to the National Sports Center for the Disabled for ski lessons. Nicholas also later took to the slopes again, not on skis this time, but in a tube. He had the time of his life snow tubing!

On yet another busy, fun-filled day, Nicholas enjoyed a very special horse sleigh ride thanks to the folks at Dashing Thru the Snow. The fun didn't end there, however. Nicholas also took a magical spin through the snowy woods on a dog sled ride.

For a breathtaking tour of Winter Park Mountain, Nicholas embarked on a trip aboard a heated, 13 passenger snowcat. And what trip to beautiful Winter Park would be complete without a snowmobile tour? For his final day in Colorado, Vanessa had arranged just that with Trailblazer Snowmobile Tours, Inc.

Nicholas returned home from his trip tired, but with plenty of pictures and even more amazing memories. For this special young boy, it truly was a dream come true.

Kids Wish Network would like to thank the following for helping to make Nicholas' wish extra special: Dashing Thru the Snow, Dog Sled Rides of Winter Park, Fraser Snow Tubing, Frontier Airlines, Hammond's Candies, Jane Creek Grill, National Sports Center for the Disabled, Payless Car Rental, Ranch House Restaurant, Scenic Snowcat Tours, Snow Tubing, Trailblazer Snowmobile Tours, Untamed Restaurant and Zepher Mountain Lodge.

Kids Wish Network is a nationally recognized non-profit organization dedicated to infusing hope, creating happy memories, and improving the quality of life for children. If you know a child between the ages of 3 and 18 who may be in need of its wish granting services, please call 727-937-3600 or toll free 888-918-9004. For more information on Kids Wish Network, visit their website at http://www.kidswishnetwork.org or their blog at http://kidswishblog.org

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Robyn Larson
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