New Website Launches Annual VBF International Day of Awareness

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The Vascular Birthmarks Foundation (VBF) has launched a new website to celebrate the 5th Annual VBF International Day of Awareness for vascular birthmarks and related syndromes, on Thursday, May 15, 2008.

The Vascular Birthmarks Foundation (VBF) has launched a new website to celebrate the 5th Annual VBF International Day of Awareness for vascular birthmarks and related syndromes, on Thursday, May 15, 2008. VBF is the largest not-for-profit foundation for patients and families affected by vascular birthmarks.

From the website, participants can register events and purchase materials; locate events in their area on the Event Calendar; download banners and logos for email/websites, download files that will help with their campaign; and join in an international read-along. The website also features the "Tell Your Story" page, where families can share stories and pictures about their experiences of living with vascular birthmarks. Visit the VBF Day of Awareness website at: http://birthmark.org/awareness

To coincide with VBF 2008 International Day of Awareness, mother and son authors Donna and Evan Ducker have established the "Buddy Booby's Birthmark Read-Along for Tolerance and Awareness". The read-along is an international effort to have schools in every country and state in the U.S. read "Buddy Booby's Birthmark", the book the Ducker's were inspired to write after being unable to find books about birthmarks for children. Evan Ducker was born with a facial port wine stain.

The VBF Day of Awareness event began as a grassroots effort to raise funds and awareness, and has gained support and momentum since the first campaign in 2004. Families and individuals organize events from garage sales; bake sales; silicone bracelet and jewelry sales; jean's day at work; cell phone recycling; to a Texas Hold 'Em event that includes dinner, raffle and a silent auction.

VBF was founded in1994 by Linda Rozell-Shannon, when her daughter was diagnosed with a hemangioma shortly after birth. Since that time, the VBF has networked over 25,000 patients into treatment. The primary mission of the VBF is to enable every child born with a vascular birthmark to receive an accurate diagnosis and appropriate treatment. One in 100 children born will have a vascular birthmark that requires the opinion of a vascular birthmarks specialist. Due to outdated information and medical practices, over 60% of all vascular birthmarks are misdiagnosed.

Based in the United States, VBF is working worldwide to distribute vital information; to provide individual and family support; and to further research for all types of vascular birthmarks and related syndromes. The VBF has established chapters in Asia, Australia, Canada, Europe, India, Latin America, New Zealand, and will soon launch a chapter in Africa. In addition, VBF has formed chapters of the Sturge-Weber Syndrome Community in the US and Canada for patients and families affected by Sturge-Weber syndrome.

For more information contact VBF Day of Awareness Coordinator, Paige Salvador at 856-234-2126.

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Paige Salvador

Linda Rozell-Shannon
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