Hull, MA (PRWEB) September 20, 2008
Boston area residents who suffer from Charcot-Marie-Tooth (CMT) disorder, a debilitating peripheral neuropathy, can participate in the first support group meeting to be held at the Beth Israel Deaconess Medical Center on Saturday, September 27, 2008, from 1 p.m. to 3 p.m. in the Leventhal Conference Room, Shapiro Building - Second Floor (handicap accessible).
Charcot-Marie-Tooth Disease affects one in 2,500 people─2.6 million worldwide - and is the most common inherited peripheral neuropathy. CMT is a progressive disorder that causes the nerve cells leading to the body's extremities to slowly degenerate resulting in loss of normal use of the hands/arms and legs/feet. It may also lead to loss of sensory functions and deformities. CMT strikes all ages, genders, races and ethnicities. People with CMT lose their ability to do daily activities that are often taken for granted.
Sponsored by the Charcot-Marie-Tooth Association (http://www.cmtinfo.org), the New England Chapter of the CMTA support group is spearheaded by local resident and Mark Boxshus, who has CMT.
"I am committed to working with the Charcot-Marie-Tooth Association to help others with CMT, and organizing the first support group for area residents is a perfect opportunity," Boxshus said. "We will offer information, education and guidance for those suffering from this disorder."
For information on the New England CMT support group meeting, contact Mark Boxshus at MarkB_CMTANE@mac.com or 781.925.4254. Refreshments will be provided. A free raffle will be held, and the winner will receive a "signature" cake courtesy of Boxshus who is well-known within the food industry as "Boscoe The Cookie Doctor."