Neuroblastoma Families, Medical Experts Gather in Chicago to Share Information, Encouragement

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In search of hope and the promise of new, more effective treatments, families from all over the world with children suffering from neuroblastoma will convene in Chicago on July 16-19 to interface with medical experts and allied healthcare providers at the Children's Neuroblastoma Cancer Foundation's (CNCF) Seventh Annual Conference, http://www.nbhope.org.

Parents come from all over the world to seek out information from leading neuroblastoma researchers and physicians and to meet other families suffering their same plight.

In search of hope and the promise of new, more effective treatments, families from all over the world with children suffering from neuroblastoma will convene in Chicago on July 16-19 to interface with medical experts and allied healthcare providers at the Children's Neuroblastoma Cancer Foundation's (CNCF) Seventh Annual Conference, http://www.nbhope.org.

Because awareness of neuroblastoma remains low among the general population, families look forward to this valuable forum to connect with other families facing the same challenges, as well as to find out about promising new treatments for this aggressive form of pediatric cancer. Children are welcome to attend the conference, with special activities planned throughout its duration in the "Kid's Room,'' including Wii and Rock Band games courtesy of Best Buy, sock Dodgeball, face painting, arts & crafts, as well as visits from a balloon maker, juggler and magician.

"Our annual conference is a very important part of CNCF's mission," said Patricia Tallungan, founder and president of the foundation. "Parents come from all over the world to seek out information from leading neuroblastoma researchers and physicians and to meet other families suffering their same plight."

A compelling educational agenda awaits attendees of this year's conference with researchers and clinicians covering all aspects of neuroblastoma diagnosis, treatment options and current research. Additionally, a concurrent tract for Angel parents will be offered, providing support from grief experts and counselors. The distinguished list of presenters for this year's program includes:

  •     Susan Cohn, MD, Comer Children's Hospital, University of Chicago
  •     Ro Bagatell, MD, Children's Hospital of Philadelphia
  •     Alice Yu, MD, University of California, San Diego
  •     Brenda Weigel, MD, University of Minnesota
  •     Pat Reynolds, MD, Texas Tech Health Sciences Center School of Medicine, Lubbock, TX
  •     Tara Henderson, MD, Comer Children's Hospital, University of Chicago
  •     Julie Park, MD, Children's Hospital, Seattle
  •     Juldy Villiblanca, MD, Children's Hospital of Los Angeles
  •     Malcolm Smith, MD, National Cancer Institute
  •     Darcie Sims, PhD, Grief, Inc.
  •     Reverend Al Johnson, Barrington, IL

In addition to hearing the latest medical news, families will be able to attend other valuable sessions on working with insurers, ideas for fundraising, the Make-A-Wish Foundation and neuroblastoma patients will tell their stories of survival.

The 2009 CNCF Conference will take place at the Hyatt Regency McCormick Place, 2233 S. Martin L. King Drive, Chicago, 312-567-1234. A block of rooms has been reserved for CNCF Conference attendees at a discounted rate. Complimentary hotel rooms are available to neuroblastoma families whose children are in active treatment, if financial support is needed.

About Neuroblastoma
Neuroblastoma is a solid tumor cancer that arises in immature nerve cells and strikes mainly infants and toddlers. It is the most common cancer affecting infants with an incidence rate almost double that of leukemia. Its cause is unknown. Nearly 70 percent of children diagnosed with neuroblastoma have advanced-stage disease. Less than 40 percent of children with advanced stage disease live five years

About Children's Neuroblastoma Cancer Foundation
The Children's Neuroblastoma Cancer Foundation (CNCF) is a non-profit national health organization committed to finding a cure for neuroblastoma through research, education, awareness and advocacy. CNCF initiatives educate the public about a disease dramatically lacking in awareness and funding. It serves as an advocate for families by influencing relevant legislation, as well as a liaison between healthcare providers and families. To learn more, visit http://www.nbhope.org.

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