Fundraising to Find a Cure for one of the Rarest Diseases in the World Boosted by Launch of new Website

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A web marketing company based in Ripon, England, has designed and recently launched a new bespoke website for the UK charity FOP Action ( The website was donated to FOP Action as one of the company's Directors has a family member who has this extremely rare condition.

Thank you to David and Becky and everyone at Bronco for donating our brilliant website which is really well designed and easy to use

FOP stands for Fibrodysplasia Ossificans Progressiva and affects only 45 people in the UK and an estimated 2,500 worldwide. It is a debilitating condition in which bone forms in the body's soft tissue when it is damaged, so a slight bump on the head or falling off a bike can result in the formation of painful hard bony growths. Many people with FOP find their mobility impaired over time as their joints become permanently fused together. FOP does not, however, affect the sufferer's mental capacity.

Husband and wife team, Dave and Becky Naylor are the Directors of Bronco, which is an internationally acclaimed web development and SEO specialist company. Dave's cousin, Kelly Sanderson, has a 3 year old daughter called Jasmine who was diagnosed with FOP at the age of 18 months, but Kelly found it hard to learn more about the condition as there was a lack of available information.

"We wanted to help Kelly and Jasmine make contact with other families who are dealing with FOP," explains Dave Naylor, "so the website is a communication hub for the charity, FOP Action, and it also raises awareness of the condition and generates funds for the research to find a cure that is ongoing at Oxford University."

The new website has already prompted a T shirt printing company Indigo Clothing to assist the fundraising efforts by printing unique FOP Action T shirts for the charity, which will be supplied free of charge.

"Thank you to David and Becky and everyone at Bronco for donating our brilliant website which is really well designed and easy to use," said Kelly Sanderson, "having a child like Jasmine with a rare condition with no cure or treatment can make you feel helpless, but by having this new UK website we feel that we are helping to raise more awareness about FOP and find a cure."

To find out more about FOP, see the profiles of people living with FOP and donate, go to


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Becky Naylor
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