Cerebral Palsy State Resource Guides Now Available

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"Cerebral Palsy Survival Guides" for all 50 states are now available for free download through the non-profit group CP Family Network website. The guides provide a listing of resources for people with CP and their caregivers. Also available are Care Notebooks for organizing medical and other data, and birth injury prevention information for expectant parents by CP legal expert Howard Janet.

When resources change, we also can alert caregivers who register with the site, ensuring they are always up to date with what's available to help adults and children with cerebral palsy

What started with the frustration of three families in three different states to find resources for their children with Cerebral Palsy has turned into the CP Family Network's "Survival Guides" for all 50 states. The non-profit organization announced today the completion of the last guide.

"As a parent of a daughter with Cerebral Palsy, I am well aware of a parent's need to find resources for our children. It has taken us almost two years, but we now have comprehensive listings of national and state-by-state cerebral palsy resources, " said CP Family Network editor Lee Vanderloop.

The free guides, called 'Survival Guides,' are organized by topic:: education, medical, respite care, therapy, recreation, and transportation. "When resources change, we also can alert caregivers who register with the site, ensuring they are always up to date with what's available to help adults and children with cerebral palsy," Vanderloop added.

The CP Family Network site also offers a down loadable Care Notebook to help cerebral palsy caregivers organize, track, log and share medical and other key information about their child or adult. "The Care Notebook was designed by parents of children with cerebral palsy based on their experiences of trying keep track of important information over many years. It can get overwhelming. This organizational system can really help," she said.

Other information available free on the site includes sample cerebral palsy life care plans and a free copy of the booklet, "Beyond Birthing Classes: How Parents Can Help Insure Delivery of a Healthy Baby from Pregnancy, Labor thru Delivery."

"I created this 'beyond birthing' classes concept over the course of a career devoted to helping parents and their families fill this information void. For more than 25 years, I have worked with many families of babies with Cerebral Palsy. All families--no matter what the cause of the CP--have one thing in common: they are always seeking answers and help for their children. We are delighted to be able to provide the Survival Guides for them, " Howard Janet, JD, Author of Patients' Rights, Doctors' Wrongs.

CP Family Network is dedicated to helping empower cerebral palsy families through education. It is designed and written by CP families through a grant from Janet, Jenner & Suggs, LLC a national law firm specializing in helping families affected by cerebral palsy.

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Teresa Kelly

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