The brochure includes a fold-out chart of seizure symptoms and first-aid tips that can easily be displayed in community settings such as schools, colleges, community centers, restaurants, fire and police stations.
New York, NY (PRWEB) December 1, 2009
Statistics show that as many as 30 percent of people with autism also have epilepsy, so The Daniel Jordan Fiddle Foundation(DJF), a national autism organization focusing exclusively on the needs and challenges of adolescents and adults with Autism Spectrum Disorders (ASD), has developed a free informational brochure featuring tips for recognizing various types of seizures and suggested first-aid techniques.
Autism, Epilepsy & Seizures: How To Recognize The Signs and Basic First Aid When You Do is a free downloadable brochure containing general information about autism and epilepsy as well as about the co-condition of the two. It outlines the different types of seizures that might occur and offers basic first aid tips as recommended by the Epilepsy Foundation of America.
Visit the The Daniel Jordan Fiddle Foundation (DJF) website for both online readable and “printable” versions of the brochure: http://djfiddlefoundation.org/
While the brochure is geared especially to the autism and epilepsy communities, it contains essential information for the population at large to educate them on what do in a seizure emergency. This DJF-spearheaded project is medically collaborated with Dr. Ruth Nass, a specialist in pediatric behavioral neurology, who is also a member of The Daniel Jordan Fiddle Foundation Advisory Board and The New York Child Study Center; The Epilepsy Foundation of New Jersey and Autism Family Services of New Jersey.
“We are offering this brochure free of charge nationwide. It is downloadable for reproduction and also for viewing online,” says Linda Walder Fiddle, Executive Director of The Daniel Jordan Fiddle Foundation. She adds, “The brochure, which includes a fold-out chart of seizure symptoms and first-aid tips, can easily be displayed in all community settings such as schools, colleges, community centers, restaurants, fire and police stations. It is essential for EMS providers or for anyone who might be a first-responder that could make a life-saving difference.”
Dr. Ruth Nass, a specialist in pediatric neurology, states, “It is our goal to create broader awareness within the community about this co-condition; however, we would always advise that individuals and families discuss their questions and concerns with their own physician. This brochure is an excellent starting point to begin the discussion.”
Dr. Nass is a Professor of Child Neurology and Child and Adolescent Psychiatry at New York University School of Medicine and a nationally-recognized pediatric behavioral neurologist. She offers diagnosis and support to children with autism, ADD, and learning disabilities, as well as migraines and seizures.
The brochure reports that many people miss the more subtle signs of epilepsy and therefore also miss the opportunity for early diagnosis and treatment. The symptoms listed below are not necessarily indicators of epilepsy, and may be caused by some other, unrelated condition; however, if one or more is present, a medical check-up is recommended.
--Periods of blackout or confused memory.
--Occasional “fainting spells” in which bladder or bowel control is lost, followed by extreme fatigue.
--Episodes of blank staring in children; brief periods when there’s no response to questions or instructions.
--Sudden falls in a child for no apparent reason.
--Episodes of blinking or chewing at inappropriate times.
--A convulsion, with or without fever.
--Clusters of swift jerking movements in babies.
The new brochure fits squarely within DJF’s mission to develop and support programs and services that benefit adolescents and adults with Autism Spectrum Disorders. Since adolescence is one of the two most prevalent times that epilepsy arises in individuals with ASD (the other time is infancy), The Daniel Jordan Fiddle Foundation wants to help create awareness about the co-condition among individuals who are affected, their families and the community at large.
The Daniel Jordan Fiddle Foundation is an all-volunteer-run 501(c)(3) national autism organization based in Ridgewood, New Jersey. It is named for Linda Fiddle’s son Danny who died unexpectedly at age nine from what may have been an autism-related seizure. The guiding principle of The Daniel Jordan Fiddle Foundation is to honor the individuality of each person with Autism Spectrum Disorder so that they may participate throughout their lifetime in vocational, recreational, educational and residential opportunities that are suitable, stimulating and sustainable and that allow for maximum integration into the community. Quality of life issues, including health and wellness throughout the lifespan, awareness about co-morbid health conditions and the development of positive support systems for adults on the spectrum are an integral part of the DJF mission.
Ms. Walder Fiddle recently was honored as one of only five women in the United States to receive Redbook’s 2009 “Strength & Spirit” Award. She is featured, along with her co-honorees, in Redbook’s December 2009 issue which cites her inspirational work on behalf of adults with autism.
(Linda Walder Fiddle and Dr. Ruth Nass of the DJF Advisory Board are available for interviews. Call Linda Mann at 212-675-0100 to arrange a date and time.)