1st Annual Kawasaki Disease Fun Day Benefit Quest for a Diagnostic Test

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A day of fun activities and performances to raise awareness and funds for the KD diagnostic test

The Kawasaki Disease (KD) Foundation and Nicole Hershman Daniels are pleased to announce the launch of the 1st Annual Kawasaki Disease “Quest for a Diagnostic Test” Fun Day. KD Fun Day is a benefit to raise money for the University of California San Diego Kawasaki Disease Research Center’s efforts to create a vital diagnostic test. The benefit hopes to raise a minimum of $25,000 through business contributions, sponsorships and the entry fee to the event.

KD Fun day will take place at Stagecoach Park in Carlsbad, CA on Saturday, May 8, 2010 from 2 – 6 PM. The cost of the event is $10.00 per person to be paid on-site and all money raised will go directly to the KD Foundation to fund the diagnostic test. The sponsorships and contributions received to date have been very generous - the event will be a day of fun activities for families and children of all ages. Some of the local vendors that will be at the event with performances, goods or interactive sessions include Chick-fil-A Quarry Creek, Playball, Hullabaloo, JW Tumbles – Rancho Bernardo and the Jumpitz. This fun-filled event will feature face painting, balloon animals, opportunity drawings, silent auctions, prizes, giveaways, entertainment and food for your family and friends.

The KD Foundation will donate all proceeds from KD Quest for a Diagnostic Test Fun Day to the University of California San Diego Kawasaki Disease Research Center, along with a 25% match on the first $15,000 of donations.

WHY THE TEST IS SO IMPORTANT

Kawasaki disease is a potentially serious illness that affects some 4-5,000 U.S. children each year. The condition is recognized by a constellation of signs and symptoms in conjunction with supportive, but non-specific, laboratory tests. Because KD can mimic many other childhood diseases that present with fever and rash, the diagnosis may not be considered early in the course of the illness when treatment is most effective. The physical signs of the illness, such as rash, bloodshot eyes, red lips, swollen hands and feet may come and go or fade away after a few days. In the current health care system in which children may be seen by a different provider on each trip to the doctor's office or clinic, these details may not be communicated and valuable information may be lost. There is a highly effective treatment for KD—intravenous immunoglobulin—and the cardiovascular complications are in large part preventable with early treatment. Thus, the quest for a diagnostic test has become a central focus of research at the Kawasaki Disease Research Center at UCSD/Rady Children's Hospital.

The goal is to devise a point-of-service test that would be inexpensive, easy to use in a clinic or emergency room setting, and very sensitive for picking up children with KD from among the many children with simple viral illnesses who do not require special treatment.

ABOUT THE DISEASE

Kawasaki disease (KD) is a serious illness characterized by inflammation of blood vessels throughout the body that primarily affects young children and infants. KD is the leading cause of acquired heart disease in children. Although about 80 percent of patients are under five years of age, older children and teenagers can also get KD, but this is uncommon. The immediate effects of KD may not be serious but, in some cases, long-term complications including damage to the coronary arteries may result. Without proper diagnosis and treatment, about 25% of children develop heart disease involving the coronary arteries. Unfortunately, some children will develop lethal coronary aneurysms.

Although it is more prevalent among children of Asian and Pacific Island descent, KD affects people of all racial and ethnic groups. It is estimated that more than 4,200 children are diagnosed with KD in the U.S. each year. The cause of KD is unknown, although an agent, like a virus, is suspected. There is no specific diagnostic test for KD; doctors make a clinical diagnosis based on a collection of symptoms and physical findings. A vital diagnostic test will make a GLOBAL impact.

ADDITIONAL INFORMATION

For more information on how to donate goods or services to benefit the KD Fun Day, please contact Nicole Hershman Daniels, Event Founder and Coordinator, at (760) 433-1469 or dashnlefty(at)gmail(dot)com.

Additional information about the event can be found at http://www.kdfunday.org. For more information on Kawasaki Disease please visit the Web site at http://www.kdfoundation.org.

Thank you to all of the sponsors of the event. They include; Chick-fil-A Quarry Creek, Kawasaki Disease Foundation, Playball, Dasani, Eitak Paper and Paint, El Camino Pediatrics, Geppetto’s, GG Benitez & Associates, Hullabaloo, Jimbo’s...Naturally, JW Tumbles-Rancho Bernardo, Kid Ventures, Legoland California, Sealife Aquarium California, PlayWerx, Rancho Bernardo Inn, Redfearn & Associates, Stacy Bostrom Photography, the Jumpitz, Kids Crooked House, The Vintage Pearl, Dinner Studio, Orangepoppy Jewelry, Love Luggage Joint, Scot Hershman and Spy Optic.

CONTACT INFORMATION

Nicole Hershman-Daniels
Event Founder and Chair
KD Fun Day / Kawasaki Disease Foundation
San Diego Representative
Phone: 760-433-1469
Email: dashnlefty(at)gmail(dot)com
URL: http://www.kdfunday.org

Greg Chin
Kawasaki Disease Foundation
President
Phone: 978-356-2070
Email: gregorychin(at)kdfoundation(dot)org
URL: http://www.kdfoundation.org

PR Contact
Danielle Cordingley
PR & Marketing Consultant
Phone: 858-414-6651
Email: danielle(at)cordingley(dot)net

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