Van Nuys, CA (PRWEB) September 6, 2010
Often inaccurately portrayed as an uncommon or rare condition, AS actually affects more people than Lou Gehrig’s Disease, Multiple Sclerosis and Cystic Fibrosis combined.
The Centers for Disease Control and Prevention for the National Arthritis Data Workgroup estimates that AS and its related diseases affect as many as 2.4 million people in the United States, and yet, many lay people, as well as physicians, are unaware of the available patient resources to educate, inform and support these individuals.
The Spondylitis Association of America is committed to increasing awareness of AS, providing information, education and support to people with AS, and ultimately, working to uncover a cure for the disease.
Each year, SAA presents Patient Educational Seminars in major metropolitan areas throughout the country, bringing leading researchers and clinicians directly to the people affected. Patients and their families will learn about the latest in medical research, drug therapies, coping mechanisms and have an opportunity to speak directly with the leading experts in the field of AS.
This free seminar will take place at the Hotel Monaco Portland, 506 Southwest Washington Street, Portland, OR 97204 from 10:30 a.m. - 2:30 p.m. Doors open and registration begins at 10:00 a.m. The event will be held in the Alder Creek Room and will include coffee, tea and boxed lunches.
The program includes special guest speakers and ample time for questions as well as a chance to participate in small, informal group sessions to share information and mix and mingle with other patients, families and friends.
For information about attending this free seminar, please contact Elin Aslanyan at 818-892-1616, ext. 222 or at elin.aslanyan(at)spondylitis(dot)org. For more information about AS and related diseases, visit http://www.spondylitis.org.
About Ankylosing Spondylitis
Spondylitis is the term used to refer to a group of chronic, inflammatory diseases that generally strike young people between the ages of 15 and 35. Typically, spondylitis causes pain and stiffness and, in the most severe cases, can result in a total fusion of the spine and/or neck, leading to disability. Although spondylitis primarily affects the spine, it can also affect the joints of the shoulders, hips, knees and feet, as well as cause inflammation of the eye. More rarely, because AS is a systemic (whole body) condition, other organs such as the heart and lungs can also become involved.
About the Spondylitis Association of America
The Spondylitis Association of America (SAA) is the only nonprofit organization in the US dedicating all of its resources to improving the lives of people with ankylosing spondylitis and related diseases. Established in 1983, SAA is committed to increasing awareness of spondylitis, providing information and support to patients and their families, and ultimately, working to uncover a cure for the disease.
SAA produces the most comprehensive library of spondylitis resources available in the US -- including books, DVDs, CDs, brochures and other publications; an 800-page interactive website; a quarterly, advertising-free news magazine, and a network of nationwide Educational Support Groups to educate and support people living with this chronic illness.
At the forefront of every major milestone achieved in spondylitis education, research and treatment in the last 25 years, you will find the Spondylitis Association of America.