Joining forces with Dr. Waner and his Foundation, our main objective for creating an annual Advocacy Day is to bring patients, parents and others together and give guidance on how they can get involved to raise awareness and create ways to lobby insurance companies to recognize the seriousness of this potentially life-threatening condition.
New York, NY (Vocus) September 29, 2010
Hannah Storm of the Hannah Storm Foundation and Milton Waner, M.D. of the Waner Children’s Vascular Anomaly Foundation will co-chair their 2nd annual Advocacy Day on Friday, October 15 in New York City. The event will provide an opportunity for vascular birthmark patients, their parents and others touched by this condition to hear from experts and talk to each other about a variety of topics related to vascular anomalies. Some of the discussion topics will include: what it means to be an advocate from the patient and parent perspectives, how to advocate policy positions and how to create and implement grassroots strategies.
“There are so many effective treatments today available for people born with vascular anomalies, but the costs are high and many insurance companies will not cover the procedures,” said Hannah Storm. “Joining forces with Dr. Waner and his Foundation, our main objective for creating an annual Advocacy Day is to bring patients, parents and others together and give guidance on how they can get involved to raise awareness and create ways to lobby insurance companies to recognize the seriousness of this potentially life-threatening condition.”
- WHAT: 2nd Annual Hannah Storm Foundation & Waner Children’s Vascular Anomaly Foundation Advocacy Day
- WHERE: Beth Israel Hospital, Podell Auditorium, Bernstein Bldg. (On the corner of Nathan D. Perlman Place and East 16th Street)
- WHEN: Friday, October 15, 2010, 10:00 a.m. – 3:00 p.m.
- REGISTRATION: Visit http://www.hannahstormfoundation.org for registration information
- SPEAKERS: Hannah Storm & Milton Waner, M.D.; Sherri Foster, Vice President, Executive Director and Co-founder of the Waner Children’s Vascular Anomaly Foundation, and Patient Advocate for the Vascular Birthmark Institute of New York; Dr. Francine Blei, Board Certified Pediatric Hematologist & Oncologist for the Vascular Birthmark Institute of New York; Thomas J. Force, Esq. Insurance Law & Appeals expert specializing in advocating patients’ rights with insurance companies; Marc Samuels, CEO, HillCo HEALTH and Hannah Storm Foundation Policy Counsel
About Hannah Storm Foundation
The Hannah Storm Foundation was created in 2008 to raise awareness, fund treatment and provide educational information for children suffering from debilitating and disfiguring Vascular Birthmarks. Hannah's passion stems from having a port wine stain birthmark underneath her left eye. The Foundation also funds the Hannah Storm Journalism Internship at Notre Dame. It was started in 2006 as an opportunity for current Notre Dame undergraduate students to gain practical experience while working in the Alumni Association's Communications and Marketing department.
About Waner Children’s Vascular Anomaly Foundation
Dr. Milton Waner and Edward and Sherri Foster founded the Waner Children’s Vascular Anomaly Foundation (WCVAF) in 2008. WCVAF is dedicated to providing information and training on, as well as funding for the treatment of vascular lesions such as hemangiomas, vascular birthmarks, arteriovenous malformations and other complex vascular anomalies. The mission of WCVAF is to: 1) provide financial assistance to children and families of children afflicted by vascular anomalies; 2) provide funding relating to the understanding and treatment of vascular anomalies, including medical research; 3) act as a resource for parents, families and medical care professionals; and 4) support the activities of the Vascular Birthmark Institute of New York in their efforts to educate the medical community through seminars and a fellowship for training other physicians.