“While we breathed such a sigh of relief when the healthcare legislation was passed, the program reminded us that our work as individuals as well as a community is not yet done."
Georgetown, MA (PRWEB) November 5, 2010
LA Kelley Communications takes its popular newsletter, PEN's Insurance PULSE, on the road to the Capital area. PEN's Insurance PULSE is the only newsletter dedicated to insurance issues in the bleeding disorders community.
Pulse on the Road, sponsored by Baxter BioScience, is a program that addresses a variety of insurance and healthcare reform topics of urgent importance to families with bleeding disorders. The program brings the pages of Pulse to life, turns the discussion interactive, and gives families a chance to ask questions and get answers in a live forum.
The first stop was Indianapolis, Indiana, for the Hemophilia of Indiana annual meeting on August 28, 2010. The second stop was the Hemophilia Association of the Capital Area (HACA), which held an educational seminar on October 23 in McLean, Virginia.
The audience, consisting of people with hemophilia and family members of people with hemophilia, shared real-life stories, discussed upcoming insurance changes, and enjoyed a Q&A forum. Expert speakers from several states also presented their own stories, scenarios, and solutions. The keynote speaker was James Romano, director, Government Relations and Advocacy of Patients Service, Inc., a nonprofit that provides insurance premium coverage when families with chronic disorders lose their insurance. He focused on subjects that are paramount to families with hemophilia, including when lifetime maximums and pre-existing condition clauses will be eliminated.
The audience asked pertinent questions: What is the difference between annual caps and lifetime caps? Would physical therapy be limited under the new reform? Will insurers seek to limit access to choice of product or choice of factor provider? (Factor is the name of the blood-clotting medicine used to treat hemophilia) These questions stirred a lively debate, while also giving the panel ideas for the next Pulse on the Road event.
"While we breathed such a sigh of relief when the healthcare legislation was passed, the program reminded us that our work as individuals as well as a community is not yet done. The panelists highlighted the many details that remain to be worked out. We all need to be mindful of these since they can have a huge impact on coverage and cost. The program was very informative!"
(Laura Shumway, VA, mother of child with a bleeding disorder)
"I thought the presentation for Pulse on the Road was well-balanced and up-to-date given all the changes with healthcare benefits and new regulations. It allowed participants to ask questions about some of the issues regarding the changes that have already occurred and the changes that are expected in the very near future. Those in the bleeding disorders community need to stay vigilant and well informed." (Nina Duggan, VA, mother of children with bleeding disorder)
We hope to bring six more Pulse On The Road events to various chapters in 2011, so visit http://www.kelleycom.com and click on the Events tab for future locations.
About LA Kelley Communications, Inc.
Since 1990, LA Kelley Communications has been a world leader of groundbreaking educational materials and programs on hemophilia and related bleeding disorders. With more than a dozen books, numerous publications, and the oldest hemophilia newsletter in America, LA Kelley Communications remains a trusted source of practical information about raising children with bleeding disorders. For more information about LA Kelley Communications, Inc, please visit http://www.kelleycom.com or call 978-352-7657.
About Baxter International, Inc.
Baxter International Inc., through its subsidiaries, develops, manufactures and markets products that save and sustain the lives of people with hemophilia, immune disorders, infectious diseases, kidney disease, trauma and other chronic and acute medical conditions. As a global, diversified healthcare company, Baxter applies a unique combination of expertise in medical devices, pharmaceuticals and biotechnology to create products that advance patient care worldwide. Baxter is a registered trademark of Baxter International Inc, its subsidiaries or affiliates.