Rare Genomics Institute Founder and President Honored as TED Fellow

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Dr. Jimmy Cheng-Ho Lin is among the 25 innovators awarded with 2012 TED Fellowship

The Rare Genomics Institute (RGI) announced today that their founder and President, Dr. Jimmy Cheng-Ho Lin has been awarded the prestigious 2012 TED Fellowship, which honors young innovators in all disciplines.

“Jimmy Lin’s amazing innovation on how to research, diagnose and treat rare diseases, which affect mostly children, harnesses the power of the web to help families pay for the genetic sequencing necessary to open up new options for diagnosis treatment, bring palpable relief after often years of battles to get proper healthcare” said Tom Rielly, Director of the TED Fellows program. “TED chose Jimmy for his unorthodox approach to pushing past the walls of conventional healthcare funding and treatment to help desperate families.”

RGI empowers patient communities to accelerate research by helping fund and create personalized research projects based on individuals with rare diseases. Leveraging the latest advances in genome sequencing technology with the expertise of leading genome scientists, RGI applies this innovative science to rare genetic disease patients, funding it through a social media platform.

"Being selected as a 2012 TED Fellow is a tremendous honor and a sign of confidence in the work that RGI has started," said Jimmy Lin. "TED in particular is the perfect forum for bringing international awareness to our work on emerging trends in crowd-funding and genomics."

Jimmy Lin is the lead computational biologist for the ground-breaking cancer genome sequencing efforts from the Vogelstein Lab at Johns Hopkins. Their sequencing of the first 100+ cancer exomes in 5 different tissue types has helped lay the foundation for a revolution in cancer genomics.

About RGI (http://raregenomics.org)
RGI empowers patient communities to accelerate research for patients with rare diseases. To do this, they provide three innovative services. First, a micro-funding website: an online fundraising platform and social network that helps patient communities raise funds. Second, a researcher network: access to top genomics researchers who are willing to sequence and analyze these patients. Third, a clinical network: connecting patients with clinicians and genetic counselors who will help interpret and translate the individualized research findings. Together with all three services, RGI aims to democratize translational research by making it affordable and available to all rare disease patients.

About TED (http://www.ted.com )
TED is a nonprofit organization devoted to "Ideas Worth Spreading," and the annual TED Conference invites the world's leading thinkers and doers to speak for 18 minutes. Their talks are then made available, free, at TED.com. TED speakers have included Bill Gates, Al Gore, Jane Goodall, Isabel Allende and former UK Prime Minister Gordon Brown. The TED Fellows program brings outstanding individuals who have shown unusual accomplishment, exceptional courage and moral imagination into the TED community in order to amplify the impact of their remarkable projects and activities.


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