“I looked for support online and all I found was loneliness. This disease is one of the cruelest, because unlike cancer, there were no support groups for it.”
Buffalo, NY (PRWEB) May 05, 2011
For more than a decade, while Wayne Brown studied for his undergrad, graduate degree and eventually began work as a history teacher, he became increasing tired, gained a significant amount of weight and developed an under bite. Shortly after he started teaching high school students about Columbus and Jefferson, he knew something was wrong. After numerous tests and specialists, Brown was diagnosed with a tumor caused by the rare disease acromegaly.
Acromegaly is a disease caused by a small, benign pituitary tumor that is diagnosed in only about 3 out of every one million people per year. The small tumor has the power to affect the entire body leading to rapid and enormous growth, weight gain, and other ailments. Brown searched for information online. “There was woefully little written about the disease,” Brown said. “I looked for support online and all I found was loneliness. This disease is one of the cruelest, because unlike cancer, there were no support groups for it.”
Brown left education and founded Acromegaly Community Inc., a nonprofit organization that offers counsel and compassion to people across the world affected by the disease. Searching for another way to bring awareness for people who suffer from chronic illness, Brown collaborated with other acromegaly patients to share their compelling stories and to help others feel less isolated.
Alone in My Universe offers support and guidance through the stories of people who’ve suffered in silence leaving family and friends without the means to understand or help. “Everyone diagnosed is scared to death because no one had any answers.” Now patients can feel part of something bigger and find information and support from others experiencing the same effects. Brown said, “The book serves as a beacon of hope not just to patients diagnosed with acromegaly, but for anyone suffering from a chronic disease.”
About the author: Wayne Brown, M. Ed., is the founder of Acromegaly Community, Inc. As a former inner-city High School Social Studies teacher, he earned his Bachelor of Arts in History and Government from Daemen College in Snyder, New York, and his Master of Education from State University College at Buffalo. In November 2010, he was awarded Daemen’s Alumni award: Graduate of the Last Decade for his work with Acromegaly Community, Inc. Wayne has been featured in the New York Times’ “Patient Voices” for his experiences with Acromegaly. He has also been published in the Washington Post, Wall Street Journal, and Buffalo News.
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