Congenital Glaucoma Network Announces Significant Growth in Membership Numbers

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The first dedicated online social network for people affected by childhood glaucoma sees large growth in membership numbers, demonstrating a critical need for its services.

The Congenital Glaucoma Network, the first dedicated online social network for people affected by childhood glaucoma, is pleased to announce significant growth in membership numbers. Since its launch in January 2011, CGN has exceeded the 100 member mark and encompasses active users from 20 countries spanning 6 continents.

The Congenital Glaucoma Network fills a major gap by serving as a compassionate community that facilitates discussion, provides support, and promotes awareness of congenital and childhood glaucoma. Parents, caretakers, and adults affected by this rare eye disease interact through blogs and forum discussions, photo and video sharing, and participation in online glaucoma-related events.

“The initial response to the network has been overwhelming which shows a critical need for more support and awareness of this devastating disease” says CGN founder, Amy Michelle Yom, who was born with unilateral congenital glaucoma. “The word ‘glaucoma’ immediately elicits thoughts of the elderly who are disproportionally affected by the disease, but it is important to realize that many infants and children will struggle with this chronic condition throughout their entire lives.”

In the United States alone, congenital glaucoma is believed to affect 1 in 10,000 live births. This eye disease is characterized by elevated intraocular pressure due to improper drainage of the aqueous humor within the eye. These defects are serious, and can cause permanent damage to the optic nerve resulting in visual impairment or blindness if left untreated.

Unfortunately, common signs of congenital glaucoma which include light sensitivity, excessive blinking, cloudy vision, headaches, corneal edema, and ocular enlargement are often overlooked. Late diagnosis makes this rare disease extremely difficult to treat. Other forms of childhood glaucoma include developmental glaucoma, infantile glaucoma, juvenile glaucoma, and secondary glaucoma.

Living with congenital glaucoma can be an emotional roller coaster for a child and their caretaker, filled with frequent trips to the hospital, numerous surgical procedures, and constant medication. However, if diagnosed early and given proper medical attention, young congenital glaucoma patients stand the best chance to protect their vision.

About Congenital Glaucoma Network:
The Congenital Glaucoma Network is a place to facilitate discussion, provide support, and promote awareness of congenital and childhood glaucoma.


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