Michigan Lupus Foundation Lobbies for Lupus in Washington, D.C.

Share Article

Executive Director Frank Mortl, III meets face-to-face with Congressmen to discuss the top issues surrounding lupus

Executive Director Frank Mortl, III during his trip to Washingon, D.C.

The trip resulted in great progress in the fight against lupus, focusing on clinical trials, local Michigan involvement, prescription issues within Medicare and more

Michigan Lupus Foundation Executive Director Frank Mortl, III traveled to Washington D.C. on December 13th as part of We Work for Health – Michigan (WWFH – MI) to lobby for increased lupus research and funding. During the trip Mortl met with Congressman Fred Upton, Congressman Dave Camp’s office, and Congressman Bill Huizenga’s office. The trip resulted in great progress in the fight against lupus, focusing on clinical trials, local Michigan Involvement, prescription issues within Medicare and more.

During the meeting with Congressman Upton and Legislative Director Mark Ratner, WWFH - MI presented the Congressman with Michigan Lupus Foundation legislative materials and the WWFH – MI vendor data report highlighting the importance of the biopharmaceutical industry in the state of Michigan including the need for increased research monies targeting lupus and other autoimmune diseases. Also discussed were the importance of Medicare Part D and the potentially harmful impact imposing Medicaid-style rebates could have on this program and the beneficiaries.

Later in the afternoon, Mortl met with Jim Brandell, Chief of Staff with Congressman Dave Camp's office. Jim was presented with the WWFH - MI vendor data reports along with Michigan Lupus Foundation legislative materials and stated that future medical investments in the 4th Congressional District were very important. Both clinical trials for lupus patients along with the preservation of Medicare Part D were addressed. Mr. Brandell pointed out that Congressman Camp was one of the original creators of Medicare Part D and they are proud that costs are lower than projected. Mr. Brandell stated that the Michigan Lupus Foundation and WWFH - MI each have a strong advocate in "Chairman" (Camp) regarding our issues.

Immediately following was a meeting with Jon DeWitte, Chief of Staff with Congressman Bill Huizenga. Mr. DeWitte was presented with the WWFH – MI vendor data reports and Michigan Lupus Foundation legislative materials. Mr. DeWitte stated that Congressional assistance with lupus and autoimmune disease as well as the biopharmaceutical industry are important subjects to Congressman Huizenga’s constituents in west Michigan.

The Michigan Lupus Foundation represents the over 85,000 Lupus Warriors in Michigan and northern Indiana, and is the only nonprofit organization located in the state of Michigan dedicated to helping people understand how to live with lupus. For more information or to see how you can get involved, visit milupus.org or call 800-705-6677.

Share article on social media or email:

View article via:

Pdf Print

Contact Author

Josh Price
Follow us on
Visit website