“Princess” of Medical Hardships to Address Patients and Advocates About Strength During Adversity

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Tanya Angus, who prefers the nickname “Princess,” will speak publicly about living with her rare pituitary tumor, Acromegaly, and how she keeps pushing forward in spite of mounting medical bills and daunting medical procedures. Within this conversation Angus will talk about the importance of a positive outlook.

"I thought it was very important for Tanya to share her story of perseverance and determination"
-Karen Strutynski
Patient Advocate and Mother of Tanya Angus

Acromegaly, most famously diagnosed in Andre the Giant, has had a life-changing impact on tens of thousands of patients and their families throughout the United States and the world.

Tanya Angus, who prefers the nickname “Princess,” will speak with fellow patients and loved ones about living with her rare pituitary tumor and how she keeps pushing forward in spite of mounting medical bills and daunting medical procedures. Most importantly, she will share her secrets to maintaining a positive outlook in the face of adversity. Acromegaly, most famously diagnosed in Andre the Giant, has had a life-changing impact on tens of thousands of patients and their families.

This event will take place at It’s About the Community! 2012 hosted by Acromegaly Community (http://www.AcromegalyCommunity.com), an organization dedicated to helping people battling this rare tumor.

On June 8, 2012, Acromegaly Community will be kicking off its second annual convention, offering bonding, mutual support and information for patients and loved ones impacted by Acromegaly; a rare pituitary disorder that causes an overproduction of growth hormone.

Acromegaly is a serious condition caused by a benign tumor in the pituitary gland that secretes excessive growth hormone. Untreated, Acromegaly can cause severe bone and soft tissue changes including facial frontal bossing, enlarged hands and feet, sleep apnea and carpal tunnel syndrome.

"I thought it was very important for Tanya to share her story of perseverance and determination," reported Karen Strutynski, patient advocate and Tanya’s mother. Angus, probably one of the most famous patients living with Acromegaly, is going to be discussing living with Acromegaly, how she keeps pushing forward and the importance of a positive outlook. Check out her website at: http://www.tanyaangus.com/

Acromegaly Community's mission is to provide an emotional and communal support network for people touched by Acromegaly. Featured speakers will include Dr. Daniel Kelly, MD from the Brain Tumor Center at John Wayne Cancer Institute at Saint John’s Health Center and Catherine Jonas, LMFT from Cedars-Sinai Cancer Institute. The purpose of this gathering is to offer information and support for people who normally do not get to bond with others with the same issues. A feature of this weekend will be specific events strictly focused on the needs of advocates, loved ones, and medical professionals. Medically-focused media is welcome to attend and participate in the weekend’s program.

Attendance space and sponsorship opportunities are still available. Interested parties can inquire at http://www.AcromegalyCommunity.com or by calling (716) 844-8780.

For more information or press credentials to the event, please contact: Wayne Brown, Executive Director, Acromegaly Community wayne(at)acromegalycommunity.com Office: 716.844.8780. Fax: 716.844.8807
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Wayne Brown

Wayne Brown