Morgellons Sufferers Continue The Fight To Be Heard

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Researchers Expose Flawed CDC Study at Upcoming Morgellons Disease Conference in Austin, Texas

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The CDC study was flawed from the very beginning in its method of participant selection,

On March 24 and 25, 2012, Morgellons sufferers will unite at the fifth annual Morgellons conference sponsored by The Charles E. Holman Foundation in Austin, Texas. Attendees of the conference, “Searching for the Uncommon Thread”, will convene to continue the fight against Morgellons disease.

Morgellons disease is a complicated, often misdiagnosed, illness that’s characterized by unusual fibers under the skin, slow-healing skin lesions, overwhelming fatigue, and an array of neurological deficits. The term “Morgellons disease” was adapted by Mary Leitao whose three-year-old son was stricken with the illness.

Recently, thousands of individuals suffering from Morgellons endured a barrage of skepticism when the Center for Disease Control (CDC) concluded that, based on their evaluation, participants’ symptoms were due to existing medical and psychiatric conditions. Despite the recent CDC assessment, a number of doctors, researchers, scientists, and sufferers will meet in Austin to discuss the latest scientific discoveries related to the disease. Speakers from as far as Canada, Germany, and Australia will present their latest findings.

During the two day conference, attendees can expect to hear from Morgellons researchers who are experts in the fields of microbiology, dermatology, and internal medicine. On the first day of the conference, Dr. Randy Wymore, Director of Research for Oklahoma State University Center for Health Sciences, Center for the Investigation of Morgellons Disease (CIMD), will present an updated report on the most recent research from his team, as well as a look towards planned research projects. The second day of the conference will focus on patient support, advocacy, and activism.

“The CDC study was flawed from the very beginning in its method of participant selection,” stated Cindy Casey, Director of The Charles E. Holman Foundation (CEFH), a registered nurse and a Morgellons sufferer herself. “It appears that the participants in the study did not exhibit the symptoms commonly associated with Morgellons,” Casey noted. According to Dr. Wymore, “we have definite concerns about how the participants were selected and evaluated.”

Casey and fellow Morgellons sufferers remain encouraged despite the mounted skepticism. “When you’ve dealt with this disease as long as some of us have, you become resilient,” expressed Casey. “We’re battling Morgellons disease. It will take a lot more than a flawed CDC study to knock us down.”

The Morgellons conference is an annual gathering of doctors and others from the Morgellons community. Sponsored by The Charles E. Holman Foundation in Austin, Texas, its purpose is to discuss the latest scientific discoveries in Morgellons research. The foundation was named for Charles E. Holman, a pioneer in the fight against Morgellons disease.

For more information or to register for the conference, please visit http://www.thecehf.org.

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Denise James

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