Tick-Borne Disease Alliance Launches National Public Awareness Campaign And Quest To Develop Diagnostic Tool And Find A Cure For Major Public Health Problem

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Turn the Corner Foundation and The Tick-Borne Disease Initiative join forces to form national organization to fight tick-borne diseases including Lyme

Tick-Borne Disease Alliance plans to embark on a quest to develop a reliable diagnostic tool as a first step toward eradicating tick-borne diseases.

Two organizations dedicated to awareness about Lyme and tick-borne diseases, Turn the Corner Foundation and The Tick-Borne Disease Initiative, announced today that they have joined forces in a nonprofit called the Tick-Borne Disease Alliance (TBDA), http://www.TBDAlliance.org.

As part of its mission to educate the public about the alarming escalation of tick-borne diseases, TBDA is launching a national public awareness, advocacy and fundraising campaign. Lyme disease is the fastest growing infectious disease and the most common tick-borne disease in the country. Its increasingly virulent co-infections contribute to what is a major public health problem. Along with TBDA’s efforts to raise awareness, the organization plans to embark on a quest to develop a reliable diagnostic tool as a first step toward eradicating tick-borne diseases. Working with others in the tick-borne disease community nationwide, TBDA seeks to help create a unified voice about this epidemic in order to make a difference. TBDA will be inviting other tick-borne disease-related organizations in the United States to work together in its efforts to coalesce a national movement around the issue.

“Despite how rapidly these devastating diseases are spreading, there is shockingly limited research being conducted, and misinformation and misconceptions abound,” said David Roth, Co-Chairman of TBDA’s Board of Directors and a Managing Director at Blackstone Real Estate Advisors. “As an essential first step to helping eradicate these diseases, TBDA will be supporting research to develop as sensitive and specific a diagnostic tool as is possible with our current knowledge. We will also work with elected officials to move tick-borne diseases, including Lyme, to the forefront of national and state public health agendas.”

At this time, there are no vaccines in use to prevent Lyme disease or the co-infections in the United States. Available diagnostic tools have not been proven to be 100% reliable. The Center for Disease Control (CDC) reports that people diagnosed in the early stages of Lyme disease and treated with appropriate antibiotics usually recover; however, approximately 10-20% of patients may experience recurring and persistent symptoms. There is concern that the actual number of cases of recurring illness may be much higher. More facts about tick-borne diseases can be found at http://www.TBDAlliance.org/getinformed/lyme-disease.

Turn the Corner Foundation was founded a decade ago by Staci and Richard Grodin, and The Tick-Borne Disease Initiative was created in 2010 by David Roth. Both Staci Grodin and David Roth were diagnosed with Lyme and co-infections. Their difficult experiences with ongoing misdiagnoses and searching for effective medical treatments gave them the impetus to become personally involved in this public health issue and to help others.

“Lyme and tick-borne diseases are an escalating public health issue that may be on track to be the next epidemic,” said Grodin, President of TBDA’s Board of Directors. “Turn the Corner Foundation and The Tick-Borne Disease Initiative came to the conclusion that the most effective and successful way to get the word out about these serious diseases was to marshal our efforts and pool resources into a single organization that can take a leadership role.”

For more information about TBDA, Lyme and tick-borne diseases, and information about prevention and protection, visit http://www.TBDAlliance.org. Follow the organization on Facebook at http://www.facebook.com/TBDAlliance and on Twitter at twitter.com/tbdalliance.

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