Cambridge, Cambridgeshire, UK (PRWEB UK) 30 May 2012
Dowsing for Sound’s charity choice is no random pick.
Dowsing for Sound is a Cambridge music collective of 60 voices and a ripping house band. This year, on the 16th of June, the group is performing at the Corn Exchange in a line up which promises to be inspiring, exciting and rousing with a repertoire that ranges from Scandinavian soundscapes to the driving beats of indie-rock tracks.
Dowsing for Sound aims to donate some of the proceeds from the gig to two charities, one of which is the Cystic Fibrosis Trust; a charity which holds very personal meaning to a few members in the choir who either suffer from cystic fibrosis or have children who do.
Will Cramer sings in the tenor section and is known for his beautiful solo performances. Will was diagnosed with a strain of cystic fibrosis called Delta 508x2 when he was just three months old; it’s a common but serious strain of this genetic disease. Cystic fibrosis impairs lung function severely because the lungs produce thick mucus which accumulates and leads to a cycle of chest infection and inflammation. CF also affects digestion.
As Will grew, he discovered a love of singing and joined his Norfolk church choir when he was seven before joining the Norwich Cathedral choir when he was ten years old. By the time Will got to Trinity College on a choral scholarship, he found it difficult to maintain a consistent standard of performance, even having to take intravenous antibiotics while on tour.
Finally, Will couldn’t sing more than a bar without needing to breathe and decided to stop singing altogether. Shortly after, he went onto the waiting list for a double lung transplant. To qualify for this, CF sufferers tread a fine balance between being healthy enough to survive the transplant operation but ill enough to have come near to having exhausted even the most obscure antibiotics to maintain their lung function.
Will was told to expect a six to eight month wait for a transplant but ended up waiting for just 11 weeks when a midnight call from the hospital had him and his wife, Vicky, driving to the hospital to get ready for this serious surgery. Will was operated on for nine hours, spent three weeks in hospital and was then sent home into the care of his wife.
“The recovery process is terrifying, apart from feeling terrible, your family is placed under enormous strain caring for you in the months after the surgery. I don’t know anything about the person who gave me my new lungs but I am immensely grateful to his or her family for allowing the organ donation to happen. I can breathe, I can sing and I can do exercise, the surgery has completely changed my life, before my operation I needed ambulatory oxygen and overnight I had to use a ventilator.”
“The Cystic Fibrosis Trust raises awareness and funds research and that’s very important, recent discoveries have revealed life changing pharmaceutical solutions for suffers of some CF mutations, this is work which matters, it’s a horrible disease and I wouldn’t wish it on anyone.”
Will is singing with Dowsing for Sound on the 16th of June at the Corn Exchange; book your tickets at the box office. Apart from having a brilliant night out, you’ll be supporting a very worthwhile cause.
Notes to Editors
- The Cystic Fibrosis Trust is the UK's only national charity dealing with all aspects of Cystic Fibrosis (CF). It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with Cystic Fibrosis.
- Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases. It is caused by a faulty gene that controls the movement of salt and water in and out of the cells within the body. As a result, the internal organs, especially the lungs and digestive system, become clogged with thick sticky mucus resulting in chronic infections and inflammation in the lungs and difficulty digesting food.
- Each week five babies are born with Cystic Fibrosis and two young people die - 90% from lung damage. The median age of survival for people with Cystic Fibrosis is 41 years old. Some may live longer, some may not, although improvements in treatments mean a baby born today is expected to live even longer.
- Further information can be found on our website http://www.cftrust.org.uk. Help and advice for those affected by Cystic Fibrosis is available through our Helpline on 0300 373 1000. For further information, media should contact Louise Banks on 0208 290 7912 or email lbanks(at)cftrust(dot)org(dot)uk.