Sickle Cell Advocacy Group Endorses "Living With Sickle Cell: The Struggle to Survive"
Sickle Cell Information Center Calls memoir a "factual and medically accurate account" of what sickle cell patients endure.
Alexandria, VA (PRWEB) May 31, 2012
Judy Johnson’s new memoir Living With Sickle Cell Disease: The Struggle to Survive, has picked up a ringing endorsement from the Sickle Cell Information Center, a prominent sickle cell disease advocacy group.
Writing in the group’s newsletter to 4,000 subscribers, webmaster Allen Platt listed Judy’s book as a “well written self-published life account of growing up with sickle cell disease in the 1960s and the problems with treatment into 2012. There are many accounts of unfavorable emergency department encounters commonly shared by those with sickle cell disease. The book is factual and medically accurate.”
The Sickle Cell Information Center is affiliated with Grady Memorial Hospital in Atlanta. Its mission is severalfold:
- To deliver sickle cell patient and professional education, news, research updates and worldwide sickle cell resources.
- Providing world class compassionate care, education, counseling, and research for patients with sickle cell disease.
- Helping break the cycle of sickle cell disease cycle.
The center’s web address is http://www.scinfo.org
In Living With Sickle Cell Disease: The Struggle to Survive, Judy describes in vivid detail how she endured repeated instances of insensitive treatment from doctors and nurses whenever she went to emergency rooms seeking relief from severe pain episodes brought on by sickle cell disease.
The book tells readers how Judy lived her life while enduring the incurable pain and fatigue. Living With Sickle Cell Disease: The Struggle to Survive is available in hard cover, paperback and e-book versions through http://www.lulu.com
. Her book is also available through Apple’s iBookstore. Readers also may visit Judy’s website at http://www.judygrayjohnson.com