IETF Reports Fiscal Year Goal for ET Research Grows Because of the Power of One Person

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Tulips for Tremor ET Research Campaign Grows from Individual Donor-Activists. Essential tremor, a neurological movement disorder, affects nearly 10 million people in the U.S. alone. ET is frequently misdiagnosed as Parkinson’s disease.

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Natalie Kusilek of River Falls, Wisconsin wrote a letter to her seven children to request small donations totaling $200 that she could send to the International Essential Tremor Foundation’s (IETF)Tulips for Tremor http://www.essentialtremor.org fundraising campaign for essential tremor (ET) research. Her children in turn started a letter-writing campaign in the community. Ultimately, Kusilek’s touching letter generated over $1,500 in donations with more to come.

“Natalie’s donation to the IETF is a small but important milestone. She demonstrates the power of one person to reach many people and inspire action,” announced IETF Executive Director Catherine Rice. “We are that much closer to our fiscal year goal of raising $250,000 for ET research. Funding this research will one day lead to better treatment and cures for ET.”

Essential tremor, a neurological movement disorder, affects nearly 10 million people in the U.S. alone. ET is frequently misdiagnosed as Parkinson’s disease. The condition is often characterized by rhythmic, involuntary and uncontrollable shaking of the hands and arms during movement, but it sometimes can also affect the head, voice, legs and trunk.

“Small dollar amounts donated from many individuals can have a great impact just as much as a major donation,” says Rice. “In this economy, we rely on the power of people everywhere to increase ET awareness and raise funds in any amount that can make a difference to others.”

About The International Essential Tremor Foundation
Headquartered in Lenexa, Kan., and founded in 1988, the International Essential Tremor Foundation is the leading organization in the world dedicated to helping those affected by essential tremor. The IETF funds research to find the cause of essential tremor (ET) that leads to a treatment and cure, increases awareness, and provides educational materials, tools, and support for healthcare providers, the public, and those affected by ET. Since its inception, the IETF has distributed more than $500,000 in research grants to fund 12 promising ET research studies. To learn more about essential tremor, visit http://www.essentialtremor.org.

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