Syracuse, N.Y. (PRWEB) September 04, 2012
The ALS Association Upstate New York Chapter announces its annual Rochester Walk to Defeat ALS® on Saturday, September 15, 2012 at Ontario Beach Park, 4650 Lake Avenue, Rochester, N.Y. Registration for the Walk begins at 10 a.m. with the opening ceremony starting at 11 a.m. The Walk is open to the public, and all funds raised will be donated to The ALS Association Upstate New York Chapter a not-for-profit organization dedicated to finding the cause of and cure for amyotrophic lateral sclerosis (ALS), a devastating and fatal neuromuscular disease that is also known as Lou Gehrig’s Disease.
This year’s Walk to Defeat ALS will be led by “Honorary Person with ALS” Bill Harvey along with his family and “Team Harvey.” Harvey resides in West Bloomfield, N.Y., and was diagnosed with ALS in August 2010. An avid outdoorsman and downhill skier, Harvey was forced to give up his hobbies because walking over uneven terrain became unsafe.
“We are honored and thrilled that Bill and his team will join us to lead the participants on a beautiful Walk along the new boardwalk”, said Kathy Lahey, the chapter’s Executive Director. “Bill is a strong advocate and is doing his part to create awareness about the disease, including his involvement in a clinical trial.” As a military veteran, Harvey is active in the local American Legion, and he vigorously researches information about the connection of ALS to those who have served in the military. Statistics show that people who have served in the military are at a greater risk of developing ALS and dying from the disease than those with no history of military service, regardless of the branch of service.
Unless a cure is found, more than 30,000 Americans living today will die from ALS. The financial cost to families of persons with ALS can be up to $250,000 per year, depleting entire savings of patients and their relatives.
Team Harvey invites everyone in the Rochester area to join them on September 15 to walk for those who can’t. Walk shirts will be available with a $50 donation.
“We’re expecting a large number of walkers,” said Shawn Michaloski, Walk Committee Chair. Raffle Director Terry Grant has assembled an incredible array of raffle items including bikes, a flat screen television, and jewelry, while Walk committee member Joe Marinucci, who is living with ALS, mapped out the course so walkers can enjoy the view of Lake Ontario from the boardwalk. Michaloski’s brother, Craig, died from ALS complications last year. Craig and his family raised more than $20,000 for the 2011 Rochester Walk to Defeat ALS.
The ALS Association is funded solely by donations, and the chapter offers services to people with Lou Gehrig’s Disease and their families free of charge. To learn more about the Walk to Defeat ALS, call the chapter toll free at 866-499-7257 or visit http://www.alsaupstateny.org.
The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. For more information about The ALS Association, Upstate New York Chapter, visit our website at http://www.alsaupstateny.org.