Governor Pat Quinn Declares September 20th Myelofibrosis Awareness Day in Illinois

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The MPN Research Foundation - which focuses in part on Myelofibrosis - made the request to the governor of Illinois.

On September 5, 2012 Governor Pat Quinn signed and delivered a proclamation declaring September 20th Myelofibrosis (also known as MF) Awareness Day in Illinois. Myelofibrosis is a chronic, and progressive blood cancer that can cause an enlarged spleen, imbalance of blood cells and severe symptoms that can gravely affect a patients’ quality of life and is sometimes fatal. Because it is rare, with a prevalence of approximately 30,000 in the U.S., few people know what it is or means when they are diagnosed. Many health care professionals do not see MF patients often and some encounter their first patient with little knowledge about the disease or treatment options.

The MPN (Myeloproliferative Neoplasm) Research Foundation located in Chicago, Illinois has been funding key research specifically in three disease areas including MF since 1999. As part of their mission, the Foundation hosts educational symposia for patients, family members, caregivers and health care teams. On September 20th, 2012, the first Midwest MPN Patient Education Symposium will be held in Chicago at the Doubletree on the Miracle Mile.

Esteemed MPN/MF researchers and clinicians will present the latest breakthroughs in research, clinical trials and treatment options and discuss ways to improve quality of life issues. For more information about the symposium visit:

The entire MPN community of patients, caregivers and family members will be working hard to promote MF Awareness Day on September 20, 2012. Thanks to Governor Quinn, Illinois is the first to make it official.

For more information about myelofibrosis, go to

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Ann Brazeau
MPN Research Foundation
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