Nonprofits Seek Feedback from Essential Tremor Patients

Allsup sponsors Essential Tremor Awareness Web Survey™ to support more effective treatments

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Register at WebExpo.Allsup.com

With their feedback, we can raise awareness and advocate for more research funding to improve patient options and outcomes.

Belleville, Ill. (PRWEB) September 14, 2012

Essential tremor (ET) is the most common movement disorder in the U.S., but effective treatments are still elusive, according to Tremor Action Network (TAN). Allsup, a nationwide provider of services for people with disabilities, including ET, is pleased to support the research conducted by TAN and HopeNET through their Essential Tremor Awareness Web Survey™ . The survey is designed to help develop more effective ET treatments.

“The fact that there have been no new therapies identified in the last six years highlights the need for essential tremor research,” said TAN executive director Kathleen Welker. “We need new therapies, such as tolerable anti-tremor drugs that improve tremor, non-invasive surgeries like the Focused Ultrasound clinical trial, and complimentary and alternative care.”
Welker and HopeNET’s executive director Peter Muller, pointed out that existing treatment options, including beta-blockers, anticonvulsants and benzodiazepines, botulinum toxin injections (Botox) and invasive surgical procedures aren’t always effective. Many ET patients choose to live with symptoms that are difficult to treat, rather than experience potential negative side effects.
Essential tremor is a chronic, progressive neurological disorder that can occur at any age, but is most common in older adults. It is a repetitive involuntary movement that causes parts of the body—most commonly the hands, but also arms, head and trunk—to tremble. ET is often mistaken for Parkinson’s disease. Nearly 10 million Americans live with ET, about 10 times the number living with Parkinson’s disease.
There is no known cure. Although it may be mild in some people, ET can worsen, leaving people disabled, unable to perform life’s daily activities. Essential tremor often affects employment, and individuals may be eligible for Social Security Disability Insurance.
TAN and HopeNet encourage national and international patients diagnosed with ET to take the survey at https://www.surveymonkey.com/s/GHBLCHC.

“With their feedback, we can raise awareness and advocate for more research funding to improve patient options and outcomes,” said Muller.

For more information on essential tremor and TAN, visit the resource center at the Allsup True Help® Disability Web Expo. Register now at WebExpo.Allsup.com for the live one-day event on Sept. 27, and re-visit the updated environment during the on-demand period through Dec. 26.

ABOUT TREMOR ACTION NETWORK
TAN is the first volunteer 501(c)(3) nonprofit public benefit organization founded by people diagnosed with essential tremor, cervical dystonia (spasmodic torticollis), Parkinson ’s disease and tremor-related neurological movement disorders. We are dedicated to advocating for the millions of diagnosed and undiagnosed children, adults, and next generations affected by essential tremor and tremor-related neurological disorders. Patients needing more information and resources to manage their ET symptoms may contact Kathleen Welker at (510) 681-6565 or email info(at)tremoraction(dot)org.

ABOUT ALLSUP
Allsup is a nationwide provider of Social Security disability, Medicare and Medicare Secondary Payer compliance services for individuals, employers and insurance carriers. Founded in 1984, Allsup employs more than 800 professionals who deliver specialized services supporting people with disabilities and seniors so they may lead lives that are as financially secure and as healthy as possible. The company is based in Belleville, Ill., near St. Louis. For more information, go to http://www.Allsup.com or visit Allsup on Facebook at http://www.facebook.com/Allsupinc.


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. Allsup True Help Web Expo Agenda for Sept. 27. Register today at WebExpo.Allsup.com

This free online event is designed to meet the needs and interests of people with disabilities and chronic illness. Caregivers, healthcare providers and the general public also are encouraged attend.