I was so moved by the individuals living with hydrocephalus and their families that I wanted to continue helping raise awareness...and money to fund critical research that will give these individuals hope.
Bethesda, MD (PRWEB) September 17, 2013
Annie Bany, a singer-songwriter best known for her alternative pop-country style, will perform at the annual National Capital 5K Run/WALK for Hydrocephalus on Sunday, September 29, 2013 in West Potomac Park. The event will raise funds to support critical research initiatives and current education and outreach programs of the Hydrocephalus Association, the nation’s largest patient-advocacy organization dedicated to serving the estimated 1 million Americans living with hydrocephalus.
“I performed at the WALK event in Portland this June. I was so moved by the individuals living with hydrocephalus and their families that I wanted to continue helping raise awareness about hydrocephalus,” stated Bany. “This condition alters an individual’s life. They never know when their life will be interrupted by the next brain surgery. I want to help raise awareness and money to fund critical research that will give these individuals hope.”
Hydrocephalus is a condition in which cerebrospinal fluid accumulates in the brain. There is no cure and the only treatment option requires brain surgery. About two in every 1,000 babies are born with hydrocephalus. It can also develop as the result of a traumatic brain injury (TBI) or as a part of the aging process in the senior population, where it is often misdiagnosed as Alzheimer’s or Parkinson’s disease.
"We are very excited to have Annie play at our event this year. She is an incredible performer and her energy and music will really create a festive atmosphere for our runners and walkers," stated Amanda Garzon, the event co-chair and mother of a 13 year old daughter with hydrocephalus. Bany will feature songs from her soon-to-be released album, as well as favorites from her first album, "Barefoot and Young."
The Hydrocephalus Association’s 3rd annual National Capital 5K Run/WALK will be held on Sunday, September 29, 2013 at West Potomac Park in Washington, DC. Check in will open at 6:30 am; the race begins at 8:00 am. An estimated 600 participants are expected to run or walk in the event, which is being managed by Race DC Timing. Wilson Komen, a professional international runner, will serve as the celebrity lead runner for the race. Washington Capital Mascot, Slapshot, will be making a guest appearance to cheer on the runners and walkers.
This is a family-friendly run with prizes being given for top racers in age brackets ranging from 12 and under through 70 and over. There is also a Kids Fun Run for younger children. Sponsors for this year’s event include Vetted Solutions, Georgetown Running, Nutryvitta, Winston Wu Photography, Washington Capitals, RedStar WorldWear, Drink More, and Giant Foods.
About the Hydrocephalus Association
Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association is the nation’s largest and most widely respected organization dedicated to hydrocephalus. More than 60 percent of HA's funding comes from individual donations and events, and approximately 35 percent comes from foundation and corporate grants. The Hydrocephalus Association's mission is to eliminate the challenges of hydrocephalus. For more information, visit the Hydrocephalus Association Web site at http://www.hydroassoc.org or call (888) 598-3789.