"These centers prove that a small rare disease organization can save lives and move mountains in the race toward a cure."Rino Aldrighetti , PHA President and CEO
Silver Spring, Md. (PRWEB) September 03, 2014
The Pulmonary Hypertension Association and its Scientific Leadership Council have spearheaded a quality improvement initiative to accredit Pulmonary Hypertension Care Centers (PHCC) across the country. These centers are committed to providing high-quality care based on broadly accepted standards of care and consensus guidelines. These centers aspire to improve outcomes of patients with pulmonary hypertension – a rare and debilitating disease of the lungs that affects the functioning of the heart and can lead to right heart failure. Without treatment, mean survivability is only 2.8 years.
The American College of Chest Physicians (CHEST) has endorsed this accreditation process and sees it as another indicator of high quality care are for pulmonary hypertension patients.
“The PHCC are a testament to the growth in research and awareness of pulmonary hypertension,” said Rino Aldrighetti, PHA President and CEO. “We have grown from one treatment in 1996 to 12 in 2014, with more on the horizon. These centers prove that a small rare disease organization can save lives and move mountains in the race toward a cure.”
Currently there are six pilot centers that have gone through the accreditation process. The online application process will open in mid-September 2014. For more information on PH Care Centers, go to http://www.PHCareCenters.org.
About the Pulmonary Hypertension Association
Headquartered in Silver Spring, Md., the Pulmonary Hypertension Association (PHA) is the country's leading pulmonary hypertension organization. Its mission is to find ways to prevent and cure pulmonary hypertension and provide hope for the community through support, education, research, advocacy and awareness. PHA does this by connecting and working together with the entire PH community of patients, families and medical professionals. PHA facilitates more than 245 support groups around the country and delivers continuing education for medical professionals.
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