New York, NY (PRWEB) June 11, 2014
The National Hemophilia Foundation (NHF), the global leader of information to the bleeding disorders community, today announced the launch of its newly redesigned hemophilia.org corporate website. The redesigned website has improved navigation and search functions, streaming social media content, updated information on programs, services and events for the bleeding disorders community and enhanced functionality across any mobile device.
The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, NHF is based in New York City with 52 chapters throughout the United States. NHF’s programs, initiatives and events are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC).
“Access to current information that is provided online by our corporate website and is available at any time through the use of any desktop or mobile device is critical in the lives of individuals living with a bleeding disorder”, stated John Indence, vice president of marketing & communications for NHF. He goes on to say that: “The redesign of the hemophilia.org website provides easier access to timely information about bleeding disorders, treatment options, medical providers, MASAC recommendations, our chapter network, news of interest, NHF contact information, posts on NHF’s social media platforms, as well as information about programs, services and events all in one portal”.
The newly redesigned corporate website coincides with the expansion of NHF’s bilingual resources and information. Headlines about the US population in the past 30 years continue to state the obvious: the Hispanic population is growing. The total Hispanic population surpassed 50 million in 2011. That is one-sixth of the total US population. By 2060, the population is projected to grow to 31% of the nation’s total, according to a March 2011 tabulation of US Census data provided by the Pew Research Center. Nearly every industry that serves the public must change the way it communicates to reach the growing Hispanic population, a population that remains underserved.
NHF is committed to serving Hispanic families. Sweeping overhauls of some of its main educational vehicles, including its Steps for Living in Spanish and HemAware en espanol websites, publications like its Guidelines for Growing done in partnership with the Centers for Disease Control and Prevention and NHF education events, will target Spanish-speaking families affected by bleeding disorders. Social media continues to be an effective way to reach Hispanics. The Pew American Life Project reported that 80% of Hispanics use social media, higher than any other ethnic group.
NHF will launch Spanish social media platforms to share information and encourage connections among Hispanic families. This includes listening to those on the ground─social media followers, local chapter leaders and hemophilia treatment centers (HTCs) ─who have urged NHF to essentially become bilingual. NHF will strive to remain the global leader and provider of information about the bleeding disorders community and will continue its efforts into expanding into the Hispanic population.
About the National Hemophilia Foundation: The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, NHF is based in New York City with 52 chapters throughout the United States. NHF’s programs, initiatives and events are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention (CDC). NHF’s information resource center (HANDI) is available to answer questions, fulfill information requests, provide quality educational publications, and make referrals to additional sources of assistance. HANDI information specialists are available to answer requests from Monday through Friday, 9:00AM to 5:00PM EST, toll-free by dialing 1.800.42.HANDI (1.800.424.2634) or via e-mail at: handi(at)hemophilia(dot)org. NHF’s Steps for Living Web site, stepsforliving.hemophilia.org/, provides comprehensive information on bleeding disorders for kids, adolescents, adults, parents and health educators to promote healthy living through all life stages. HemAware, NHF’s award-winning print and online magazine, hemaware.org/, reports on issues pertinent to the bleeding disorders community. For more information, visit NHF online at: hemophilia.org. Visit us on Facebook at: facebook.com/NationalHemophiliaFoundation. Follow us on Twitter @NHF_Hemophilia at twitter.com/NHF_Hemophilia.