Seattle, Wa (PRWEB) January 10, 2013
The Chris Elliott Fund (CEF) is excited to announce the ending of a huge year for brain cancer and brain tumor education, awareness, advocacy and support. The brain cancer patient advocacy and services organization sent 2012 off with a bang adding several new programs and adding capacity to several old programs. On top of 2012 being a tremendous 12 months for the organization in its four pronged attack to end brain cancer through education, advocacy, awareness, and support, they are also taking huge steps in 2013 towards organizational growth.
Among its big accomplishments in 2012, the largest is their successful adoption of a larger patient services program. The National Brain Tumor Society (NBTS) appointed the Chris Elliott Fund as the “National Voice” for Brain Cancer Patients in September of 2011, and reduced its own day-to-day patient contact center. This has directed more patient inquiries to the Chris Elliott Fund. Since September of 2011, the CEF has streamlined and expanded their services via their Health Information Concierge services, making 2012 the first full year taking on the larger patient load. CEF is now fielding brain cancer patient requests from all outlets, including in person, via their world class call center and 1-800 patient services hotline, in addition to email and social media outreach options.
2012: A Big Year for Brain Cancer Advocacy Rockstars!
On top of tackling a growing patient and caregiver database, the organization has made huge strides in its 4 pronged attack to end brain cancer:
Education: In education growth, the Chris Elliott Fund pioneered their first ever Brains Matter Education and Awareness, Patient & Caregiver Conference in September of 2012. The event gathered 8 experts and inspirational speakers from across the United States who presented to over 75 patients, caregivers, healthcare professionals and survivors. Attendees had the opportunity to individually engage with the brain cancer experts in break-out sessions and small discussions. CEF is looking forward to offering the 2nd Annual Brains Matter Education & Awareness Conference in September of 2013, register for the event on CEF’s website!
Awareness & Support: The Chris Elliott Fund also saw expansion in national fundraising and awareness efforts that are spreading across the country. These events range from the Zombie Walk for Brain Tumor Awareness, right in CEF's backyard in Richland, Washington, to the 5th Annual Chili Cook-off in Lake Mary, Florida to the Louise T. Fein Memorial Foundation’s 3rd Annual Strike-Out Brains Tumors fundraiser in New Orleans! In addition to the nation-wide events, CEF always enjoys partnering with the Seattle Brain Cancer Walk (SBCW), and 2012 was no different. SBCW was a huge success bringing together Team CEF and Team Defeat Goliath with brain cancer survivor and new partner to CEF, David Heyting. CEF was also excited to walk alongside Team Warriors4Dad, led by CEF’s own Health Information Concierge Maria Barrett. All teams raised funds and awareness for CEF's Integrated Patient Support Program at the Ben and Catherine Ivy Center for Advanced Brain Tumor Treatment in Seattle's Swedish Neuroscience Institute.
All of these partnerships with the Chris Elliott Fund are fantastic and encouraged by any who wish to support the Chris Elliott Fund to spread awareness for this disease and help CEF end brain cancer. In 2012 these individual events raised over $45,000 for the Chris Elliott Fund and invaluable awareness for this disease. CEF would like to thank all those have made awareness and fundraising events in partnership with the organization.
The Chris Elliott Fund’s signature events were also very successful. The 2nd Annual Brains Matter Celebration Auction and Awareness Luncheon was a big success and CEF was happy to have New Day NW's own Margaret Larson as the Keynote speaker for the event and John Curley as master of ceremonies. The CEF team is looking forward to a tremendous 2013 at the 3rd Annual Brains Matter Awareness Auction & Celebration Luncheon, on May 16th at the Bellevue Club. The 11th Annual Chris Elliott Fund Celebrity Golf Tournament saw great turnout and CEF is excited to take on new opportunities and sponsorship partners in the 2013 event, more details to come soon!
Advocacy: Part of the Chris Elliott Fund’s effort to end brain cancer is to advocate for patients by expanding their outreach capacity. One way this is done is by expansion of an important network of expert doctors and advisers in the field. In this respect, in 2012 CEF also introduced 5 new medical advisers, Dr. Mitchell S Berger, Dr. Henry Friedman, Dr. Santosh Kesari, and Dr. Maciej M. Mrugala, and Dr. Michael Prados. CEF plans to grow this list even more in 2013, potentially doubling their medical advisory board. CEF also hopes to grow their board member team and add 5-8 new additional members. Other growth and outreach include CEF's opportunity to attend the Society of Neuro-Oncologists (SNO) Annual Conference. CEF is a member of SNO, and is planning greater involvement in 2013's conference in San Francisco. The organization is also a member of the Washington Biotech, Biosciences Association and part of the American Association of Cancer Research. All of these memberships and new partnerships help CEF grow their advocacy capacity for all brain cancer patients they help and advocate for in the brain cancer community.
Looking Ahead in 2013: Growth, Change and Above all Ending Brain Cancer
While 2012 ushered in many exciting opportunities for the organization, CEF is pushing for an even better 2013 with several new opportunities. First and foremost is the creation of a brand new educational series, including a new educational Brains Matter Webinar Series for patients and caregivers. This webinar series will consist of 24 patient and caregiver webinars featuring several well known, experienced doctors and experts in the field of brain cancer. The first of these webinars being offered January 17th 2013, with Dr. Greg Foltz. The webinar topic is on the top 10 vital questions you must ask your doctor when diagnosed with brain cancer or a brain tumor. Registration is available now! 2013 educational opportunities are also being expanded to include 4 awareness videos released throughout 2013 via social media, TV and to the Chris Elliott Fund website, in addition to the production of a series of fact sheets to be downloaded from the Chris Elliott Fund website. All of these services will be provided free of charge as part of the Chris Elliott Fund’s goal to make Brain Cancer Patient Advocacy Rockstars out of everyone.
2013 will also bring literal expansion, as CEF looks to expand their offices in mid 2013 to larger office space in Redmond, Washington. They are also seeking major donor capacity build out capital/funding to build new full-time positions like an executive director, development director, executive assistant, program director and grant writer.
The organization will also be partnering with Glassy Baby in late winter/early spring for a feature in one of their Road Shows at JM Cellars in Woodinville, Washington. More details to come on the Chris Elliott Fund website.
Needless to say the organization is making huge changes in the coming year, growing and expanding their capacity to provide patient and caregiver support to an even greater number of people and increase their role in the patient and caregiver community to ultimately end brain cancer.
About the Chris Elliott Fund:
The Chris Elliott Fund (CEF) is a patient advocacy organization and national 501(c)(3) non-profit with corporate offices in Seattle, Washington, with goals to end brain cancer through education, advocacy, awareness and support. Established in 2002, CEF has grown to provide support nationally for brain cancer and brain tumor patients seeking guidance, advice, and assistance to demystify finding the absolute best course of treatment for their brain cancer or brain tumor. This has been made possible over the past 11 years through the Chris Elliott Fund’s world class call center, through raising more than $1.5 million for research advocacy and support, in establishing the Christopher Stewart Elliott Neuro-Oncology Lab for Glioblastoma at the Dana-Farber Cancer Institute in Boston, in establishing the Integrated Patient Support Program at the Ben and Catherine Ivy Center for Advanced Brain Tumor Treatment in Seattle's Swedish Neuroscience Institute and being a leader in funding key scientific research to end the disease. The organization and its advocates, on average, serve 500-800 patients and caregivers per month free of charge. If we can help, please contact us at WeCare@EndBrainCancer.com