In Search of a Cure: CNCF Neuroblastoma Forum Unites Families, Leading Medical Experts

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CNCF annual conference to be held July 8-10 in Schaumburg, Illinois; parents have the opportunity to seek out information from leading Neuroblastoma researchers and physicians, and to meet other families struggling with the same issues.

Children with Neuroblastoma enjoy the activities in the CNCF Conference Kids Room while parents receive critical information from leading Neuroblastoma experts.

This conference saved my child’s life.

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“This conference saved my child’s life,” from an attending parent.

Since 2002, the Children’s Neuroblastoma Cancer Foundation’s Parent & Caregivers Education Forum has touched the lives of more than 650 families from across the globe with children suffering from Neuroblastoma, an aggressive form of pediatric cancer. It is the only one of its kind in the world, attracting the leading Neuroblastoma researchers and medical experts, and remains the most important event of the year for Neuroblastoma parents looking for answers and support.

The Eighth Annual event will be held on July 8-10, 2010 at the Hyatt Regency Woodfield – Schaumburg, 1800 East Golf Road, Schaumburg, Illinois, USA 60173, Tel: +1 847 605 1234 Fax: +1 847 605 0328. For additional details, visit http://www.nbhope.org.

“The annual CNCF education program is a critical part of our mission,” said Patricia Tallungan, CNCF founder and president. “Parents come from all over the world to seek out information from leading Neuroblastoma researchers and physicians and to meet other families struggling with the same issues. It is without a doubt, our most important initiative of the year.”

A highly interactive agenda defines this year’s conference with researchers and clinicians covering all aspects of Neuroblastoma diagnosis, treatment options and current research. Additionally, a concurrent tract for Angel parents will be offered, providing support from grief experts and counselors. This year’s distinguished list of presenters includes:

  •     Susan Cohn, MD, Comer Children’s Hospital, University of Chicago -- Overview of Neuroblastoma & Intermediate Risk Study Updates
  •     Shakeel Modak, MD, Memorial Sloan Kettering Cancer Center -- NK Cell Therapy Update
  •     Giselle Sholler, MD, University of Vermont -- Update on Vermont Trials
  •     Clarke Anderson, MD, City of Hope -- Stem Cell Studies and Update on Transplant Study at COH
  •     David Salsberg, PsyD, New York University Langone Medical Center -- Neuropsychological/Learning Issues Facing NB Children
  •     Yael Mosse, MD, Children’s Hospital of Philadelphia -- ALK/ABT Study & Results
  •     Pat Reynolds, MD, PhD Texas Tech Health Sciences Center School of Medicine, Lubbock, TX -- Update on Fenretinide and Accutane Side Effects
  •     Kate Matthay, MD, University of California, San Francisco -- Overview of NANT trials
  •     Peter Zage, MD, PhD, The University of Texas M.D. Anderson Cancer Center -- 3F8 Trial at M.D. Anderson
  •     Greg Yanik, MD, University of Michigan -- MIBG/Ultratrace Therapy
  •     Melissa Alderfer, PhD, Children’s Hospital of Philadelphia -- Post Traumatic Stress in Parents and Children
  •     Michael Burke, MD, University of Minnesota -- Oncolytic Virus Trial

Your Support is Essential
In order to ensure the ongoing financial viability of this event and to cover travel expenses for families’ currently in treatment or with financial need, CNCF is seeking event sponsors. For more information on how you can help, please click here. CNCF would like to thank Alfonso Soriano of the Chicago Cubs and his Foundation for a generous $7,500 grant for this year’s program.

About Neuroblastoma
Neuroblastoma is a solid tumor cancer that arises in immature nerve cells and strikes mainly infants and toddlers. It is the most common cancer affecting infants with an incidence rate almost double that of leukemia. Its cause is unknown. Nearly 70 percent of children diagnosed with Neuroblastoma have advanced–stage disease. Less than 40 percent of children with advanced stage disease live five years

About Children’s Neuroblastoma Cancer Foundation
The Children’s Neuroblastoma Cancer Foundation (CNCF) is a non-profit national health organization committed to finding a cure for Neuroblastoma through research, education, awareness and advocacy. The premier source for Neuroblastoma information and resources, CNCF initiatives educate the public about a disease dramatically lacking in awareness and funding. It serves as an advocate for families by influencing relevant legislation, as well as a liaison between healthcare providers and families. To learn more, visit http://www.nbhope.org.

Media Contact:
Lisa DiBenedetto
630-289-0811

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