Preparing for the Next Generation of Healthcare

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Landmark Roundtable Kicks off Project to Define E-Patient Bill of Rights

Digital Health Coalition

“We brought this group together and facilitated the conversation because we are all patients and all patients will soon be E-Patients. The rise of digital technologies is just speeding the pace of that change."

As a precursor to the 2011 e-Patient Connections conference, a group of 30 patients, industry thought leaders, and health activists gathered in a Philadelphia meeting room on September 19, 2011 to discuss the future of a healthcare system where empowered, engaged, and educated electronically-connected patients take control of their health. Fuelled by access to the latest health and medical content online, mobile technologies to facilitate access and control, and the ability to engage with other patients on a global scale, these e-patients are rapidly becoming an integrated part of the health and treatment continuum and refuse to sit quietly as bystanders waiting for instructions from the medical and health professionals around them. Attendees represented a wide range of therapeutic conditions and disease states, including ADHD, diabetes, HIV/AIDS, cancer, multiple sclerosis, fibromyalgia, lupus, cerebral palsy, Crohn’s disease, and rheumatoid arthritis.

The group was assembled by leading digital marketing agency Klick Pharma (klickpharma.com), top online healthcare publisher HealthCentral (healthcentral.com), the newly formed nonprofit think tank the Digital Health Coalition (digitalhealthcoalition.org), and with support from WEGO Health (wegohealth.com). “Digital will forever change healthcare with the same transformative and democratizing forces that have disrupted the entertainment and communication industries,” said Jay Goldman, Vice President of Strategy for Klick Pharma. “We brought this group together and facilitated the conversation because we are all patients and all patients will soon be E-Patients. The rise of digital technologies is just speeding the pace of that change."

The outcome of the half-day workshop was the creation of a framework for the first draft of the E-Patient Bill of Rights:

Shared access to my data
Attitude of collaboration and overall respect
The patient is the largest stakeholder
Transparency and authenticity across all areas
Voice of the patient is a legitimate (clinical) source
The right to efficient communication with providers who utilize the technology that we need

To learn more about this project and to get involved, please visit http://www.epatientbillofrights.org or attend an informational webinar on October 11 at 4pm EST. Registration for the webinar is available at http://bit.ly/epatwebinar

Attendees of the September 19, 2011 Meeting

Eileen Bailey (healthcentral.com/profiles/c/1443)
Mark Bard (digitalhealthcoalition.org)
Alex Baldwin (healthcentral.com/about/alex-baldwin/)
Ann Bartlett (healthcentral.com/profiles/c/9993)
Phil Baumann (philbaumann.com)
Robert Breining (poziam.org)
Dave deBronkart (epatientdave.com)
Bob Brooks (wegohealth.com )
Bennet Dunlap (ydmv.net)
Lisa Emrich (brassandivory.org)
Jay Goldman (klickpharma.com)
Joe Farris (digitalhealthcoalition.org)
Amy Gurowitz (mslol.wordpress.com)
PJ Hamel (healthcentral.com/profiles/c/78)
Mark S. King (myfabulousdisease.com)
Sarah Krug (e-patients.net)
Lucie Leblois (healthcentral.com/about/lucie-leblois/)
Tiffany Peterson (http://www.tiffanyandlupus.com)
Jenny Pettit (myuiiblog.blogspot.com)
Casey Quinlan (mightycasey.com)
Teri Robert (helpforheadaches.com)
Rudy Sims (rudysims.com)
Michael Weiss (hospitalpatient.com)
Kelly Young (rawarrior.com)

Klick Pharma
Founded in 1997, Klick Pharma is a full-service strategic digital marketing agency that helps healthcare companies define and execute innovative communication strategies. We employ the latest technology and thought leadership to provide industry leaders such as Pfizer, Novartis, Bristol Myers Squibb, Amgen, and Takeda with e-Marketing, e-Business, and e-Learning solutions. Klick Pharma has been consistently recognized as one of the fastest growing companies (Profit Magazine, Deloitte Technology Fast 50® and Fast 500 in North America); one of the 50 Best Managed Companies (Deloitte, CIBC, Queen's, National Post); a Best Employer (Toronto Star, Hewitt); Best Small to Medium Employer (Hewitt, Queen’s); and one of the top 10 healthcare solutions firms (Branham Group). For more information, please visit our website at http://klickpharma.com or follow us on Twitter at @klickpharma.

HealthCentral
HealthCentral (HealthCentral.com) empowers people to improve and take control of their health and well-being through more than 35 condition- and wellness-specific interactive health sites, including #1 HIV/AIDS site TheBody.com and healthy living resource Wellsphere.com. HealthCentral is venture backed by IAC/InteractiveCorp, Polaris Ventures, Sequoia Capital, The Carlyle Group and Allen & Company.

Digital Health Coalition
The Digital Health Coalition (digitalhealthcoalition.org), a 501(c)(3) nonprofit organization, was created to serve as the collective public voice and national public forum for the discussion of the current and future issues relevant to digital and electronic marketing of healthcare products and services. The Digital Health Coalition's vision is to identify and then recommend specific actions that will inform digital healthcare communication and engagement for the benefit of the public at large.

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