Kidney Cancer Association Announces New Social Network

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Kidney Cancer Connect brings together families that are dealing with kidney cancer

Connecting families and friends

Join KidneyCancer.ME

You’re frightened, feeling isolated, and you don’t know where to turn.

“Get on the map!” Bill Bro, CEO of Chicago-based Kidney Cancer Association (KCA), encourages families that are dealing with kidney cancer to join the charity’s newest social network, KidneyCancer.ME.

“When a family becomes connected with KidneyCancer.ME, the new website that hosts the Kidney Cancer Connect social network, they’ll instantly find themselves on our map. This feature enables the user to quickly find other families nearby who are dealing with renal cancers.”

According to Bro, one of the toughest challenges faced by families living with a child who has been diagnosed with Wilms tumor, a rare pediatric form of kidney cancer, is dealing with feelings of isolation. “Imagine how difficult it is to receive a diagnosis of cancer,” Bro says. “Then, you fear there is no nearby family dealing with this same malignancy. You’re frightened, feeling isolated, and you don’t know where to turn.”

Kidney Cancer Connect enables the nearly instantaneous networking of families dealing with any renal malignancy and isn't limited to just Wilms tumor. A new user signs in at KidneyCancer.ME, enters as much personal information as desired, and is able to find others quickly in the same region, perhaps even in the same city or town, who are dealing with these challenges.

“KidneyCancer.ME is one of the greatest advances of the 21st Century in facilitating disease-specific conversations among patients, caregivers, and family members,” Bro adds. “Another advantage is our seamless integration with Facebook. Users can login at KidneyCancer.ME using a Facebook ID, and then switch easily back and forth between these two highly robust social networks.”

According to the Kidney Cancer Association’s website designers, a key advantage of Kidney Cancer Connect is its mapping feature. “Enabling one to instantly find others nearby who are dealing with kidney cancer is a huge advantage,” according to Bro.

Kidney Cancer Connect also includes a forum where users can initiate a topic-based discussion on any area of specific interest. Other users can search these sections to find useful information. “This method is more intuitive and easy to use than Facebook,” Bro says. “Searching for specifics in a Facebook group is considerably more difficult than in our forum at KidneyCancer.ME.”

Founded in 1990, the Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. It is the world's first international charity dedicated specifically to the eradication of death and suffering from renal cancers. It is also by far the largest organization of its kind, with members in more than 100 countries. It funds, promotes, and collaborates with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urological Association (AUA), and other institutions on research projects. It educates families and physicians, and serves as an advocate on behalf of patients at the state and federal levels in the United States and globally.

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Carrie Konosky
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