“Little is understood about alopecia, including the very personal feelings and journey a woman experiences when she suffers from hair loss through this autoimmune disease,” said Thea Chassin, Founder of Bald Girls Do Lunch.
Scarborough, NY (PRWEB) November 13, 2012
Bald Girls Do Lunch, the only non-profit created specifically for women with alopecia areata, launched its first-ever international survey regarding alopecia areata in women. The survey focuses on several little-understood factors of alopecia, including how alopecia affects personal and professional lives, personal feelings and challenges in living with alopecia, and how best to use donated funds to benefit women living with alopecia.
Intended to help Bald Girls Do Lunch further develop their support tools for women with alopecia, such as social events, workshops and demonstrations, the survey results will also be used to provide feedback to businesses to better meet the needs of women with the disorder.
Almost 2 percent of the population has a lifetime risk for some form of alopecia areata, an autoimmune disease that affects adults and children at random, regardless of current health. About 20 percent of those with alopecia areata have a family history of the disease, with the level of severity ranging from smooth bald patches to a complete loss of body and/or scalp hair.
“Little is understood about alopecia, including the very personal feelings and journey a woman experiences when she suffers from hair loss through this autoimmune disease,” said Thea Chassin, Founder of Bald Girls Do Lunch. “The results of this study enable us to delve deeper into how we can better serve women with alopecia through our support and resource programs, and to help these women cope with living with the disease today.”
“As a woman with alopecia areata myself, I understand the obstacles that these women endure on a daily basis,” said Chassin. “You can feel very alone in having this disease, and very misunderstood. One of the frequent questions we have to answer is explaining that we do not suffer from cancer, but from an autoimmune disease that causes hair loss. There are many misunderstandings about the disease, which is why I started Bald Girls Do Lunch - to offer expert guidance specifically for women, since bald men with alopecia typically do not face the same issues as women, such as being assumed to have cancer.”
A few key findings from the international study:
- 53% of respondents said that alopecia has somewhat or very negatively affected their personal lives.
- 33% of respondents said that alopecia has somewhat or very negatively affected their professional lives.
- 64% said they “wish they were normal.”
- 84% of respondents said they would be interested in meeting with other women in their region who have alopecia.
- Almost 80% of respondents said the best use of funds to benefit women living today with alopecia areata is for advocacy for improved insurance reimbursement of cranial prostheses.
To learn more about Bald Girls Do Lunch, sign up for events within your area, or submit an online contribution to help support their outreach to women with alopecia, please visit http://www.baldgirlsdolunch.org. If you would like additional information on how to become a sponsor or donor, please email info(at)baldgirlsdolunch(dot)org.
About Bald Girls Do Lunch
Bald Girls Do Lunch is the only non-profit (501c3) specifically created for women with alopecia areata – the autoimmune skin disease that stops the normal growth of hair on the scalp, brows, lashes and body. Bald Girls Do Lunch takes pride in bringing up-to-date and accurate medical information regarding alopecia areata. They are known for their superb motivation, practical results, and realistic expectations that improve lives quickly. Their format facilitates communication and life skills for women living with alopecia. For more information about Bald Girls Do Lunch, please visit http://www.baldgirlsdolunch.org.