“We hope both families and service providers will be actively engaged in building a comprehensive database to serve the disability community.
Austin, TX (PRWEB) January 17, 2013
The non-profit Cerebral Palsy Family Network has launched a new interactive online directory of services that help families of children with disabilities. A video tutorial shows users how to find, add, revise, review and rate disability services.
Beginning in January 2013, the “Cerebral Palsy Survival Guide” (click on the Resources tab or on the Search List icon) provides descriptions and contact information for more than 10,000 public and private providers in all 50 states that offer families of children with disabilities services in the following areas:
- Medical care
- Respite care
- Legal assistance
“A key feature of the directory is that users can review and rate the services they receive as well as share their own resources with other families,” said Lee Vander Loop, CP Family Network editor and mother of a child with cerebral palsy.
“One of the biggest challenges facing parents of children with disabilities is finding local resources that can help them,” said Vander Loop. “The information in the Survival Guide was provided by members of the CP Family Network and is expected to grow as people become more aware of it.”
“We believe it’s the first directory of its kind to allow the cerebral palsy community to help and guide each other by sharing information about the providers and services they use,” Vander Loop added.
“It’s also a powerful tool for providers who desire visibility within the disability community. The Survival Guide gives them the opportunity to add their service to the directory and update that information, such as locations, operating hours or staff, if it changes.” Vander Loop said. “We hope both families and service providers will be actively engaged in building a comprehensive database to serve the disability community.”
The CP Family Network has created an online video tutorial to show users how to find resources and enter their own. Families can search the Survival Guide by going to http://www.cpfamilynetwork.org/, clicking “Cerebral Palsy Survival Guide” under the Resources tab, and entering their state, city, specific keywords or an organization’s name. Users may also create an account which allows them to rate and review services their child has received, or enter new resources into the directory.
“Families who care for children with disabilities are in the best position to tell other families about what’s available in their areas, and also to talk about their experience with those services. Providers can quickly and directly tell potential customers about their services and update information if it changes. It’s a win-win for the disability community,” Vander Loop said.
The Cerebral Palsy Family Network is a 501-C3 non-profit organization whose mission is to provide medical and legal resources to families and children with cerebral palsy.