FightSMA Annual Research Conference and Worldwide SMA Webcast Set For April 11-12, 2013

Annual FightSMA Webcast allows SMA families to interact with top researchers.

  • Share on TwitterShare on FacebookShare on Google+Share on LinkedInEmail a friend
Press Release Attachment

Fighting Spinal Muscular Atrophy: FightSMA

SMA is the leading inherited cause of death among children under two, and FightSMA has been advancing the effort to find a treatment or a cure for the neuromuscular disease for more than 20 years.

Alexandria, Virginia (PRWEB) April 05, 2013

FightSMA, Inc., an international nonprofit with a goal of eliminating Spinal Muscular Atrophy (SMA), has set the dates for its 2013 Annual Research Conference. The conference will be April 11 and 12 at the Hotel Monaco in Washington, D.C.

SMA is the leading inherited cause of death among children under two, and FightSMA has been advancing the effort to find a treatment or a cure for the neuromuscular disease for more than 20 years. This year’s event will be the ninth annual conference held by FightSMA, during which U.S. and international researchers gather to exchange ideas and discuss the latest therapies.

During this year’s conference, FightSMA is once again making a webcast available so that SMA families around the world can participate. The webcast, held Friday, April 12, will begin at at 6:30 p.m. EDT and will feature a panel discussion with top SMA researchers answering questions from the audience. On the panel will be the following researchers:

  • Dr. Kathy Swoboda - University of Utah, School of Medicine
  • Dr. Alex MacKenzie - University of Ottawa/Children’s Hospital of Eastern Ontario Research Institute
  • Dr. Chris Lorson - University of Missouri
  • Dr. Brian Kaspar - The Research Institute at Nationwide Children’s Hospital/Ohio State University
  • Dr. Rashmi Kothary - Ottawa Hospital Research Institute
  • Dr. Christine DiDonato - Northwestern University/Lurie Children’s

Individuals are invited to particate by joining in through a homepage link on the FightSMA website, fightsma.org, at the time of the webcast. Prior to and during the event, they can tweet @FightSMA with hashtag #SMAWebcast. Questions can also be emailed to web(at)fightsma(dot)org with the subject line “Webcast”.

Also during this year’s FightSMA Annual Research Conference, FightSMA and the Gwendolyn Strong Foundation will award the first round of grants from their $250,000 Emerging Investigator Awards (EIA). The EIA program seeks to find the next generation of SMA research leaders. In this round, five $25,000 grants will be awarded. In six months, those five researchers will compete for two additional grants of $62,500 each.

FightSMA would like to thank its top-level sponsors for this year’s conference: PTC Therapeutics, ISIS Pharmaceuticals, Shire, Hill-Rom, Metro Productions, and SLAY Communications.

For more information on the FightSMA Annual Research Conference, visit http://www.fightsma.org/sma-events/annual-conference-2013/

About FightSMA
FightSMA, Inc. (http://www.fightsma.org) is a 22-year-old nonprofit organization dedicated to finding a treatment for spinal muscular atrophy (SMA), the leading genetic cause of infant death. The group has awarded research grants at more than 40 universities and research institutions in five countries.