Many people, including physicians, are not aware of Turner syndrome and as a result, the diagnosis is often missed. Half the girls are not diagnosed until their pre-teens or later. Early diagnosis and intervention is critical.
Houston, TX (PRWEB) January 20, 2012
See the strength in our members in the “Faces of Turner Syndrome” at http://alturl.com/wxoyk.
During February 2012, TSSUS will launch its second annual Awareness Campaign: “Celebrating 25 Years and Growing Stronger.”
Turner syndrome (TS) is a non-inherited chromosomal disorder that affects one in 2,500 female births. There are approximately 80,000 women and girls affected with TS in the United States with approximately 800 new cases diagnosed each year. Primary characteristics are short stature, ovarian failure, heart defects, and normal intelligence with possible learning disorders.
TSSUS still has a lot of work to do. Many people, including physicians, are not aware of Turner syndrome and as a result, the diagnosis is often missed. Half the girls are not diagnosed until their preteens or later. Early diagnosis and intervention is critical. With the help of medical specialists and a good social support system, a woman with TS can live a happy, healthy life.
The TSSUS board of directors unanimously agreed on setting an ambitious goal to “Crush Ignorance of Turner Syndrome” over the next decade.
TSSUS works to continually improve TS identification, outreach, and public relations efforts. "This is now more important than ever, given current economic conditions and insurance complications related to TS,” said Cindy Scurlock, TSSUS executive director.
Find out more about Turner syndrome, then tell a friend, family member, business associate or health care professional and help us "Crush Ignorance of Turner Syndrome."
Our mission is to create awareness, promote research and provide support for all persons touched by Turner syndrome.