No one needs to go through this alone.
Austin, Texas (PRWEB) March 08, 2012
This month, the cafe is exhibiting art by Goad, who has been a professional artist for more than 30 years. He created work depicting sunflowers and photographed them for cards that will be sold to benefit the Alliance.
“I take recycled Texas King Cotton fiber pulp, steep it in natural dyes and local water," he explains. "The liquid images are assembled on screens, and transferred onto drying blankets where they dry into sheets of textured paper. The cards are reproductions of sunflowers I made by tearing pieces of the paper into petals.”
The Alliance was the first to use sunflowers as a symbol of hope for people with the rare cancer, says board member Kevin Plottner of Alameda, Calif., a graphic designer who made the national nonprofit's original logo to honor his wife Wendy Sommers, who loved sunflowers.
“Planting them in San Francisco was a challenge though," he says. "Her sun-starved flowers never looked as good as the one in our logo.”
Siegel will sell the sunflower cards and other merchandise March 22-23 at Rio's. The East Austin café close to downtown will have a happy hour from 4 to 7 p.m. that Friday, featuring free appetizers, $1 off all beer and wine, and free caipirinhas, Brazil’s national cocktail.
Elias Martins, a native of Rio de Janeiro, is the chef. He and Ben Googins met in Brazil in 1998; they moved to Austin in 2006 and started selling their food at the Downtown Farmers' Market. In 2010, they opened the cafe.
“Mark introduced me to Rio's, and the owners have been so enthusiastic about helping the Sarcoma Alliance,” Siegel says. “I ordered their yummy cheese breads from Foodzie, and I’m really looking forward to eating my way through the rest of their menu.”
Siegel, a leiomyosarcoma survivor who lives in Tampa, will be in Austin to represent the Alliance at the annual meeting of the Society of Gynecologic Oncology, as she has done since 2006. She has known Goad since birth, she says.
"We were born in the same hospital, an hour apart," she says. Having a friend with sarcoma, Goad says, “has taught me so much about life and how people survive. No one needs to go through this alone.”
Lisa Mansell of nearby Llano says she welcomes the support she gets from the Alliance's Facebook page. Her 9-month-old granddaughter, Payton, was diagnosed with cancer at 5½ months. It took three weeks and three different institutions before doctors came back with the diagnosis: undifferentiated pleomorphic sarcoma, Mansell says. Payton has been getting three different chemo drugs and is scheduled for a second surgery today.
“I want to make sure I do everything possible for that baby,” Mansell says.
Dennis Hughes, M.D., Ph.D., an associate professor of pediatrics at the M.D. Anderson Cancer Center in Houston, says he and his colleagues would welcome little Payton if her family ever wants a second opinion. Afterward, she could return to her doctors in Austin for continued care.
"Sarcoma is a rare and complicated collection of more than 50 diseases," says Dr. Hughes, who has been named one of America's top pediatricians. "It's difficult for a doctor outside a sarcoma center to stay well-versed on all of them."
The Alliance helps reimburse people who seek second opinions from multidisciplinary sarcoma centers.
The nonprofit's forerunner was the Sarcoma Foundation, which Wendy Sommers began in the mid- to late 1990s, Plottner says. She met Suzanne Leider in their doctor’s office, and they worked together to help others. Leider founded the Alliance in 1999 in Mill Valley, Calif., after Sommers died of osteosarcoma. Leider died in 2002 of synovial sarcoma.
“It was Suzanne's idea to make the yellow ribbon with the sunflower logo on it the symbol of sarcoma,” says Liz Steinfield of San Francisco, who was Leider’s partner. “I think her using the sunflower logo was a way of honoring Wendy and all the work she did.”
“Back then there was a much less crowded ribbon scheme -- red for AIDS and pink for breast cancer,” says Leider’s brother, board member Philip Leider of Berkeley. “Lance Armstrong's yellow wristbands didn't yet exist.”
“Suzanne also came up with the idea of a Sarcoma Awareness Week in 2001, and in 2007, I expanded it to Sarcoma Awareness Month in July,” Siegel says. “Now people sell sarcoma-awareness merchandise with yellow ribbons and sunflowers on Zazzle and CafePress, and there are bracelets on Etsy. I doubt any of the profits go toward sarcoma patients or research. It makes me sick that people who don't know anything about sarcoma make money off our misfortune.”
She noted that the Alliance sells T-shirts, ribbons and other merchandise, such as the new cards, to raise money to help patients. Other sarcoma nonprofits sell merchandise for research.
“I agree that I would much rather see people directly support our nonprofit organization (and others) by their purchases,” Steinfield says. “Suz would probably be conflicted because she wanted so badly for the word to get out and awareness raised.”
Sarcoma is a cancer of connective tissue, including muscle, bone, fat, nerves, cartilage and blood vessels. It can occur anywhere in the body at any age. The Sarcoma Alliance offers a peer-to-peer network, live chat room, YouTube channel, blog and discussion board so that people can support one another and share information. For more information, visit http://www.sarcomaalliance.org.