The Sturge-Weber Foundation and Nemours DuPont Hospital for Children Announce Sturge-Weber Syndrome Education Conference in July

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Education Conference for Sturge-Weber syndrome patients and caregivers at Nemours DuPont Hospital for Children

The Sturge-Weber Foundation (SWF), a not-for-profit 501(c)3 organization and the Nemours DuPont Hospital for Children, Wilimington, DE will be hosting a special Education Conference on Sturge-Weber syndrome, Saturday, July 14, 2018.

The event will be at the Nemours DuPont Hospital for Children, 1600 Rockland Road Wilmington, DE 19803, from 8:30 AM – 2:00 PM. Guest speakers will include Dr. Harry Chugani, Director of Neurology at Nemours, Dr. Jonathan Salvin from Nemours regarding ophthalmology, Dr. Michael Sperling from TJU, and many more. This event is an opportunity for patients and caregivers to discuss treatments for SWS with experts at the hospital, learn about new treatments and research being done, ask questions and connect with other parents and patients with SWS. For further information about this Education Conference, contact Jennifer Hultberg at email: mailto:jennifer.hultberg@nemours.org.

The Nemours DuPont Hospital for Children is one of 25 centers world-wide that is a member of the SWF Clinical Care Network (CCN), a network of medical centers that have come alongside the Foundation to treat, collaborate, research and educate patients, families and the public about SWS and other Port Wine Birthmark (PWB) conditions. “The SWF recognizes the collaborative care received at the centers plays a key role in improving the quality of life for individuals living with these conditions. Together patients, dedicated physicians and the SWF will increase the pace of discovery,” says Karen L. Ball, Founder and CEO of SWF.

The Vision of the Sturge-Weber Foundation is that in all areas of life – public, professional, personal – these goals will be achievable for our members – Awareness, when the public will be able to see past the disability to the person.; Empowerment, when families and individuals will be able to obtain the medical care, employment, education, respect and personal achievement they seek; and Research, when the pace of discovery will not be hampered by lack of resources and will lead continually toward a cure and advances in treatment. For additional information on SWF, contact Susan Finnell, sfinnell(at)sturge-weber(dot)org. Visit us online at http://sturge-weber.org/

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Susan Finnell

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