It's important for the audience to see that people living with FSHD are active, passionate and leaders in their fields.
New York (PRWEB) September 09, 2013
Today The FSH Society, a world leader in combating muscular dystrophy, announced that its annual Festive Evening of Song, featuring luminary pianist Steven Blier and Broadway veteran Judy Kaye, will take place on Monday, September 30, 2013 at the New York Botanical Garden. The event will be a rare union of two musical icons to raise funds for FSH muscular dystrophy research.
FSHD, one of the most prevalent types of muscular dystrophy, is a degenerative muscle disease that causes progressive weakness, usually starting with the face, shoulder and arms, but which can attack almost any skeletal muscle. FSHD affects approximately 500,000 people worldwide and between one and two percent of the population carries a genetic trait that places future generations at risk of the disease. Currently, there is no treatment or cure.
The event, organized by patients with FSHD and their families, will feature the celebrated musicianship of pianist Steven Blier and singer Judy Kaye set against the lush backdrop of the New York Botanical Garden. Steven Blier is the Artistic Director of the New York Festival of Song, which he co-founded in 1988. In a recent New York Times Op-Ed, Joe Nocera called Blier “one of the most extraordinary people I know.”
Blier has fought a personal battle with FSHD his entire adult life. The degeneration of muscles in his legs has forced him into a motorized wheelchair, but FSHD has spared his forearms and his fingers, allowing him to maintain a busy career as a pianist. He is also known for his ability to speak and write with uncommon wit and intelligence about music. As a prized collaborator with opera stars such as Renée Fleming and Cecilia Bartoli, Blier has toured the world, performing at Carnegie Hall, La Scala and Lincoln Center. The best young singers line up at his door, hoping to receive the benefits of his tutelage.
“It's important for the audience to see that people living with FSHD are active, passionate and leaders in their fields,” said Blier. “And I relish any opportunity to collaborate with Judy Kaye – a beautiful talent and a beloved colleague.”
Legendary singer and actress Judy Kaye will sing alongside Blier. Kaye’s four-decade career has included two Tony Awards for her work in Phantom of the Opera and Nice Work if You Can Get It.
“It’s spectacular to see amazing talents like Judy and Steven come together,” said Daniel Perez, President and CEO of The FSH Society. “We hope that the evening will be a magical experience for attendees and also raise much needed funds for research on FSHD.”
Tickets for this unique event are limited and on sale now. Proceeds from the evening will benefit The FSH Society, which provides millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers.
Event Details:
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About the FSH Society
The FSH Society, founded in 1991 by two FSHD patients, is a world leader in combating muscular dystrophy. The non-profit has provided millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers. The FSH Society seeks to serve as a source of information and support for all patients and families with FSHD; act as a driving force in the development of research directed towards treatments and ultimately a cure; and bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities. For five consecutive years, the Society has received the Charity Navigator’s four-star rating, the highest distinction held by less than four percent of non-profit organizations in the country. The FSH Society offers a community of support, news and information for FSHD patients and families through its website at http://www.fshsociety.org. For more information about FSHD, please contact the Society at 781-301-6649.
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