This annual event is not only a fundraiser for much needed research and advocacy, but a time for the community to come together and learn about a disease that affects the lives of many.
IRVINE, Calif. (PRWEB) September 16, 2013
The FSH Society announced that the Fourth Annual Celebrity Walk n’ Roll fundraiser, hosted by Max Adler of “Glee,” will take place on Sunday, October 6, 2013 at Heritage Park in Irvine from 10:00 a.m. to 2:00 p.m. More than 20 celebrities and athletes will participate in the walk and festivities to raise funds for FSH muscular dystrophy research.
FSHD, one of the most prevalent types of muscular dystrophy, is a degenerative muscle disease that causes progressive weakness, usually starting with the face, shoulder and arms, but which can strike almost any skeletal muscle. FSHD affects approximately 500,000 people worldwide and between one and two percent of the population carries a genetic trait that places future generations at risk of the disease. Currently, there is no treatment.
“This annual event is not only a fundraiser for much needed research and advocacy, but a time for the community to come together and learn about a disease that affects the lives of many,” said Amy Bekier, Celebrity Walk n’ Roll Chairwoman and Organizer. “We are thrilled to have so many celebrity participants this year and we know this event will be a success.”
Celebrity guests include: model and activist Melissa Biggs, actress Lydia Cornell, Mission Viejo resident and multiple Olympic Gold Medalist Brian Goodell, actress Patrika Darbo, Olympic Gold Medalist Pat McCormick, actress Iva Franks-Iva, boxing champion Mia St. John, actress and producer Millena Gay, “CBS’s Amazing Race” winners Chip & Kim McAllister, actress Jenn Gotzon, “Brady Bunch” star Christopher Knight, Grammy Award winner Florence LaRue, actor Jerry Mathers, winner of Season 6 of “The Apprentice” Stefanie Schaffer, actor Richard Karn and Emmy nominated actor Kristoff St. John.
The event includes games, live music, prizes, live and silent auctions for getaways, fine art, jewelry and more. General admission is $25; VIP registration is $50 and includes lunch provided by Dave & Busters and the California Pizza Kitchen. Children under 12 are free to walk or $10 for lunch. Visit http://www.fshsociety.org/IrvineWalk to register or make a donation. Find more event details on Facebook at http://www.facebook.com/CelebrityWalkFSHD.
Event sponsors include California T's, Dave & Busters, California Pizza Kitchen, OfficeMax, DoubleTree by Hilton, Sports Authority, Roman Gadgets, TV Ears, K1 Speed, Pet Supply, Hansen's Natural, Cool-cups and Trader Joe's.
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About the FSH Society
The FSH Society, founded in 1991 by two FSHD patients, is a world leader in combating muscular dystrophy. The non-profit has provided millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers. The FSH Society seeks to serve as a source of information and support for all patients and families with FSHD; act as a driving force in the development of research directed towards treatments and ultimately a cure; and bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities. For five consecutive years, the Society has received the Charity Navigator’s four-star rating, the highest distinction held by less than four percent of non-profit organizations in the country. The FSH Society offers a community of support, news and information for FSHD patients and families through its website at http://www.fshsociety.org. For more information about FSHD, please contact the Society at 781-301-6649.