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Rare Diseases Hits Newsstands in the Washington Post
  • USA - English


News provided by

Mediaplanet

Mar 10, 2014, 08:45 ET

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New York, NY (PRWEB) March 10, 2014 -- Mediaplanet partners with The Washington Post to distribute a cross-platform special section entitled Rare Diseases

Because a dare disease is predicated on affecting fewer than 200,000 people a year, being diagnosed with one can induce feelings of fear, helplessness, and isolation. That is because many rare diseases present a number of very unique and burdensome challenges, from getting an accurate diagnosis, to finding and affording treatment.

Thus, many organizations have dedicated their efforts to uniting the entire rare disease community under one umbrella, with the goal of improving the outlook for these patients. With 7,000 identified rare diseases, the community comprises approximately 30 million Americans, all united under the concept of “alone we are rare, together we are strong.”

Through this special interest section, Mediaplanet and its partners aim to champion that notion of unity. With the support of Dirk Nowitzki, The Dallas Mavericks, Paula Abdul, NORD, The Global Genes Project, The MDA, The iBellieve Foundation, The Rare Genomics Institute, Patient Services Inc, and many other organizations, Mediaplanet encourages readers to take action against rare diseases.

This effort will extend the conversation beyond Rare Disease Day to continue to unite the Rare Disease communities, issue a call-to-action to lawmakers and organizations, and inspire citizens to take a proactive approach to confronting Rare Diseases. For those that are affected by a rare disease, the campaign will serve as a source of guidance and hope.

The 4-page, full-color special section features Dallas Mavericks basketball star Dirk Nowitzki, who opens up about his financial pledge to the iBellieve Foundation, which was founded by longtime friend Simon Ibell to help fund research for MPSII/Hunter’s Syndrome. It will be distributed throughout the entire Washington DC Metro Area. To explore the digital version of the campaign, click http://www.rarediseaseawareness.com.

About Mediaplanet
Mediaplanet is the leading independent publisher of content-marketing campaigns covering a variety of topics and industries. We turn consumer interest into action by providing readers with motivational editorial, pairing it with relevant advertisers, and distributing it within top newspapers and online platforms around the world.

For more information, please contact:
Joel Camacho
Senior Publisher
646-922-1412
joel.camacho(at)mediaplanet(dot)com

###

Sara Quigley, Mediaplanet, +1 646-922-1405, [email protected]

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