2nd Annual Washington, D.C. Cure HHT Team Walk on June 22nd to Raise Awareness for HHT Disease as Part of National HHT Awareness Month

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In honor of HHT Awareness Month, the 2nd Annual Cure HHT Team Walk is taking place on Sunday, June 22, 2014 at 10:00am on the National Mall in Washington D.C. With more than 100 people participating, the walk will raise awareness and funds for the HHT Foundation International.

2nd Annual Cure HHT Team D.C. Walk is taking place on Sunday, June 22, 2014 at 10:00 am on the National Mall in Washington, D.C.

On June 22, 2014 on the Mall in Washington D.C. starting at 10:00 a.m. more than 100 people will participate in the 2nd Annual Cure HHT Team Walk to raise awareness and funds to cure HHT disease. To sign up for this event, visit http://curehhtteamwalkdc.causevox.com/.

The 2nd Annual Cure HHT Team Walk is just one event occurring in the Nation’s Capital to raise awareness to HHT during National HHT Awareness Month. The public is also invited to the 7th Annual Capitol Hill Day on June 20, 2014, where individuals affected by HHT disease will visit their U.S. Senators and U.S. House Representatives to educate them on HHT and urge them to co-sponsor the HHT DATA Act (H.R. 4592) recently introduced in House and (S.908) recently re-introduced in the Senate. The bill would coordinate federal initiatives to improve early diagnosis and appropriate treatment in hopes of preventing premature death and disability, unnecessary health care costs and disability expenditures for those affected by HHT.

The 5k walk will start in front of the Washington Monument, just off of Constitution Avenue and 15th Street, and will proceed by the Lincoln Memorial and WWII Memorials. Registration opens at 10:00 a.m. and everyone is welcome.

Walk Event Details
Who: Cure HHT Team and members of the general public

What: 2nd Annual Cure HHT Team Walk to raise awareness about HHT disease

Where: National Mall, Washington, DC starting in front of Washington Memorial off of Constitution Ave and 15th Street

When: Sunday, June 22 at 10am

For more details, visit the Cure HHT Team D.C. Walk website at http://curehhtteamwalkdc.causevox.com/

What is HHT Disease?
Hereditary Hemorrhagic Telangiectasia disease (HHT) is a condition that affects one in 5,000 Americans and is largely undiagnosed. It is a vascular genetic disorder resulting in artery-vein malformations (AVMs) that can lead to disabling and catastrophic events due to bleeding into major organs such as the lungs and brain. Unrelenting, HHT affects individuals of all ages, races and genders — unless detected and treated — and can cause sudden death. Life-threatening affects of HHT, including stroke, have been identified in asymptomatic children even under 12 years of age. Early detection screening for HHT and use of readily available treatment can prevent premature deaths and long-term health complications.

About the HHT Foundation
The HHT Foundation International is the only organization in the world committed to bringing together the best thought leaders, medical experts and patient advocates working collaboratively to find a cure for HHT. The Foundation’s website, HHT.org, is the top resource for patients to find the most up-to-date news and information in the treatment of HHT disease.


HHT Foundation International’s Executive Director, Marianne Clancy, is available for interviews via email at mailto:mariannes.clancy(at)hht(dot)orgor at 410.357.9932.

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Roy Forey, HHT Board Director & Chairman of HHT Legislative Committee

Marianne S. Clancy, Executive Director
HHT Foundation International, Inc.
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