FSH Society Launches #FSHDselfies Social Media Awareness Campaign Featuring Max Adler of “Glee”

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New York Philanthropist to Donate up to $5,000 to the FSH Society, Providing $1 for Each Selfie Posted Using the Campaign Hashtag


Adding the hashtag #FSHDselfies to a selfie is a simple action, but it’s one that will make a lasting impact and help further our mission to drive awareness of this genetic disorder. - Daniel Perez, FSH Society president and CEO

The FSH Society, the Massachusetts-based charity that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced the launch of its #FSHDselfies Campaign. The campaign is designed to encourage consumers across the country to take a selfie using the hashtag #FSHDselfies to drive awareness of FSHD, a disease that is often overlooked, despite being one of the most common muscular dystrophies.

Actor Max Adler, known best for his roles on the hit TV show “Glee” and brand new ABC Family series “Switched at Birth,” is championing the cause by sharing his own selfie to kick off the campaign.

“I am so honored to be participating in the FSH Society’s Selfie Campaign,” said actor Max Adler. “The cause is very close to my heart as both my mother and grandmother were affected by the disease. We all love to take selfies these days – myself included! This campaign is the perfect way to make them count for such a deserving and important cause.”

A New York based philanthropist has pledged to donate $1 for each selfie posted with the campaign hashtag, #FSHDselfies, to the FSH Society. The donor has generously offered to give up to $5,000 toward the cause.

Anyone can participate in the campaign by taking:

  •     Taking a selfie and tagging it with #FSHDselfies and sharing it on Instagram, Twitter, Facebook and other social platforms
  •     Changing your social media profile image(s) to the #FSHDselfies logo, which you can download here: http://www.fshsociety.org/images/FSHD_Selfies_Logo.jpg

“Adding the hashtag #FSHDselfies to a selfie is a simple action, but it’s one that will make a lasting impact and help further our mission to drive awareness of this genetic disorder,” said Daniel Perez, FSH Society president and CEO. “It’s incredible the power that celebrities like Max and social media bring to elevating causes, and being a part of that with our campaign is truly remarkable.”

Affecting more than 500,000 people worldwide, FSHD is one of the most common muscle dystrophies. The genetic disorder presents a lifelong progressive loss of all skeletal muscles, typically attacking the muscles of the face (facio), shoulder blades (scapula) and arms (humerus), though it can progress to affect all skeletal muscles. Approximately one-quarter to one-third of patients end up in wheelchairs.

About the FSH Society
The FSH Society, founded in 1991 by two FSHD patients, is a world leader in combating muscular dystrophy. The non-profit has provided millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers. The FSH Society seeks to serve as a source of information and support for all patients and families with FSHD; act as a driving force in the development of research directed towards treatments and ultimately a cure; and bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities. For six consecutive years, the Society has received the Charity Navigator’s four-star rating, the highest distinction held by less than four percent of non-profit organizations in the country. The FSH Society offers a community of support, news and information for FSHD patients and families through its website at http://www.fshsociety.org. For more information about FSHD, please contact the Society at 781-301-6649.

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June Kinoshita

Katherine Bragg
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