Charlotte (PRWEB) July 29, 2014
The Multiple System Atrophy Coalition, a growing nonprofit 501 (c) 3 organization has announced the appointment of five new members to its Board of Directors. Earlier this year the Coalition announced the election of its executive directors. The MSA Coalition now has 4 Executive Directors, 6 Board members and 2 Physician Advisors. These 12 dedicated volunteers are fully focused on executing The MSA Coalition mission of education, support, advocacy and research funding for the neurological disorder Multiple System Atrophy (MSA). The MSA Coalition also aims to unite the MSA community and work in partnership with like-minded advocates and organizations to eventually defeat multiple system atrophy.
The five new Board members are made up of three former caregivers, one active caregiver, and one MSA patient. Each new member brings unique skill sets, passion, and dedication to the multiple system atrophy cause. In addition, two of the new appointees run their own, well-respected MSA organizations.
“We are very excited to see the expansion of our Board of Directors,” stated Judy Biedenharn, President of The MSA Coalition. “The past two years has seen extensive growth for the Coalition, both in terms of fundraising and educational/awareness offerings. In order to achieve our primary mission of finding a cure for multiple system atrophy, our Board needed the addition of talented individuals. Our five new Board members all bring extensive business, advocacy and/or educational backgrounds to the table, while also having real-world experience in the fight against MSA. Additionally, we view the new additions of a patient representative and a caregiver representative as critical to connecting at the highest level possible with the MSA community we serve.”
These five new members of The Multiple System Atrophy Coalition Board of Directors join current board members Judy Biedenharn, Vera James, Don Crouse, Pam Bower, Carol Langer, Dr. David Robertson, M.D. and Dr. Thomas Chelimsky, M.D. The new, larger Board of Directors is now “United to Defeat Multiple System Atrophy”.
About Multiple System Atrophy
Multiple system atrophy is a rare and fatal disorder with less than 15,000 Americans diagnosed and 35,000 undiagnosed at any given time. According to the National Institutes of Health, "Multiple system atrophy is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure such as fainting spells and bladder control problems (neurogenic orthostatic hypotension), combined with motor control symptoms such as tremor, rigidity and loss of muscle coordination. MSA affects both men and women primarily in their 50s. MSA tends to advance rapidly over the course of nine to 10 years, with progressive loss of motor skills, eventual confinement to bed, and death. There is no remission from the disease. Currently no cure is available."
About the Multiple System Atrophy Coalition
The Multiple System Atrophy Coalition is a positive beacon of hope standing up to a little known, rare, insidious disorder. Made up of dedicated volunteers, The MSA Coalition has a primary purpose of encouraging and funding research to find a cure. The Coalition also provides much needed patient and caregiver support, educational resources, and advocacy to create awareness and to fight for issues important to the MSA community. For more information or to donate to The Multiple System Atrophy Coalition, please visit: http://www.Multiple-System-Atrophy.org.