Accessibility Statement Skip Navigation
  • Why PRWeb
  • How It Works
  • Who Uses It
  • Pricing
  • Login
  • GDPR
  • Create a Free Account
Return to PRWeb homepage
  • News
  • Resources
  • Contact
When typing in this field, a list of search results will appear and be automatically updated as you type.

Searching for your content...

No results found. Please change your search terms and try again.
  • News in Focus
      • Browse News Releases

      • All News Releases
      • Multimedia Gallery

      • All Multimedia
      • All Photos
      • All Videos
  • Business & Money
      • Auto & Transportation

      • Aerospace, Defense
      • Air Freight
      • Airlines & Aviation
      • Automotive
      • Maritime & Shipbuilding
      • Railroads and Intermodal Transportation
      • Supply Chain/Logistics
      • Transportation, Trucking & Railroad
      • Travel
      • Trucking and Road Transportation
      • View All Auto & Transportation

      • Business Technology

      • Blockchain
      • Broadcast Tech
      • Computer & Electronics
      • Computer Hardware
      • Computer Software
      • Data Analytics
      • Electronic Commerce
      • Electronic Components
      • Electronic Design Automation
      • Financial Technology
      • High Tech Security
      • Internet Technology
      • Nanotechnology
      • Networks
      • Peripherals
      • Semiconductors
      • View All Business Technology

      • Entertain­ment & Media

      • Advertising
      • Art
      • Books
      • Entertainment
      • Film and Motion Picture
      • Magazines
      • Music
      • Publishing & Information Services
      • Radio & Podcast
      • Television
      • View All Entertain­ment & Media

      • Financial Services & Investing

      • Accounting News & Issues
      • Acquisitions, Mergers and Takeovers
      • Banking & Financial Services
      • Bankruptcy
      • Bond & Stock Ratings
      • Conference Call Announcements
      • Contracts
      • Cryptocurrency
      • Dividends
      • Earnings
      • Earnings Forecasts & Projections
      • Financing Agreements
      • Insurance
      • Investments Opinions
      • Joint Ventures
      • Mutual Funds
      • Private Placement
      • Real Estate
      • Restructuring & Recapitalization
      • Sales Reports
      • Shareholder Activism
      • Shareholder Meetings
      • Stock Offering
      • Stock Split
      • Venture Capital
      • View All Financial Services & Investing

      • General Business

      • Awards
      • Commercial Real Estate
      • Corporate Expansion
      • Earnings
      • Environmental, Social and Governance (ESG)
      • Human Resource & Workforce Management
      • Licensing
      • New Products & Services
      • Obituaries
      • Outsourcing Businesses
      • Overseas Real Estate (non-US)
      • Personnel Announcements
      • Real Estate Transactions
      • Residential Real Estate
      • Small Business Services
      • Socially Responsible Investing
      • Surveys, Polls and Research
      • Trade Show News
      • View All General Business

  • Science & Tech
      • Consumer Technology

      • Artificial Intelligence
      • Blockchain
      • Cloud Computing/Internet of Things
      • Computer Electronics
      • Computer Hardware
      • Computer Software
      • Consumer Electronics
      • Cryptocurrency
      • Data Analytics
      • Electronic Commerce
      • Electronic Gaming
      • Financial Technology
      • Mobile Entertainment
      • Multimedia & Internet
      • Peripherals
      • Social Media
      • STEM (Science, Tech, Engineering, Math)
      • Supply Chain/Logistics
      • Wireless Communications
      • View All Consumer Technology

      • Energy & Natural Resources

      • Alternative Energies
      • Chemical
      • Electrical Utilities
      • Gas
      • General Manufacturing
      • Mining
      • Mining & Metals
      • Oil & Energy
      • Oil and Gas Discoveries
      • Utilities
      • Water Utilities
      • View All Energy & Natural Resources

      • Environ­ment

      • Conservation & Recycling
      • Environmental Issues
      • Environmental Policy
      • Environmental Products & Services
      • Green Technology
      • Natural Disasters
      • View All Environ­ment

      • Heavy Industry & Manufacturing

      • Aerospace & Defense
      • Agriculture
      • Chemical
      • Construction & Building
      • General Manufacturing
      • HVAC (Heating, Ventilation and Air-Conditioning)
      • Machinery
      • Machine Tools, Metalworking and Metallurgy
      • Mining
      • Mining & Metals
      • Paper, Forest Products & Containers
      • Precious Metals
      • Textiles
      • Tobacco
      • View All Heavy Industry & Manufacturing

      • Telecomm­unications

      • Carriers and Services
      • Mobile Entertainment
      • Networks
      • Peripherals
      • Telecommunications Equipment
      • Telecommunications Industry
      • VoIP (Voice over Internet Protocol)
      • Wireless Communications
      • View All Telecomm­unications

  • Lifestyle & Health
      • Consumer Products & Retail

      • Animals & Pets
      • Beers, Wines and Spirits
      • Beverages
      • Bridal Services
      • Cannabis
      • Cosmetics and Personal Care
      • Fashion
      • Food & Beverages
      • Furniture and Furnishings
      • Home Improvement
      • Household, Consumer & Cosmetics
      • Household Products
      • Jewelry
      • Non-Alcoholic Beverages
      • Office Products
      • Organic Food
      • Product Recalls
      • Restaurants
      • Retail
      • Supermarkets
      • Toys
      • View All Consumer Products & Retail

      • Entertain­ment & Media

      • Advertising
      • Art
      • Books
      • Entertainment
      • Film and Motion Picture
      • Magazines
      • Music
      • Publishing & Information Services
      • Radio & Podcast
      • Television
      • View All Entertain­ment & Media

      • Health

      • Biometrics
      • Biotechnology
      • Clinical Trials & Medical Discoveries
      • Dentistry
      • FDA Approval
      • Fitness/Wellness
      • Health Care & Hospitals
      • Health Insurance
      • Infection Control
      • International Medical Approval
      • Medical Equipment
      • Medical Pharmaceuticals
      • Mental Health
      • Pharmaceuticals
      • Supplementary Medicine
      • View All Health

      • Sports

      • General Sports
      • Outdoors, Camping & Hiking
      • Sporting Events
      • Sports Equipment & Accessories
      • View All Sports

      • Travel

      • Amusement Parks and Tourist Attractions
      • Gambling & Casinos
      • Hotels and Resorts
      • Leisure & Tourism
      • Outdoors, Camping & Hiking
      • Passenger Aviation
      • Travel Industry
      • View All Travel

  • Policy & Public Interest
      • Policy & Public Interest

      • Advocacy Group Opinion
      • Animal Welfare
      • Congressional & Presidential Campaigns
      • Corporate Social Responsibility
      • Domestic Policy
      • Economic News, Trends, Analysis
      • Education
      • Environmental
      • European Government
      • FDA Approval
      • Federal and State Legislation
      • Federal Executive Branch & Agency
      • Foreign Policy & International Affairs
      • Homeland Security
      • Labor & Union
      • Legal Issues
      • Natural Disasters
      • Not For Profit
      • Patent Law
      • Public Safety
      • Trade Policy
      • U.S. State Policy
      • View All Policy & Public Interest

  • People & Culture
      • People & Culture

      • Aboriginal, First Nations & Native American
      • African American
      • Asian American
      • Children
      • Diversity, Equity & Inclusion
      • Hispanic
      • Lesbian, Gay & Bisexual
      • Men's Interest
      • People with Disabilities
      • Religion
      • Senior Citizens
      • Veterans
      • Women
      • View All People & Culture

  • Hamburger menu
  • Cision PRWeb provides efficient communication tools to continuously engage with target audiences across multiple online channels
  • Create a Free Account
    • ALL CONTACT INFO
    • Contact Us


      11AM ET Sunday – 8PM ET Friday

  • Send a Release
  • Sign up
  • Log in
  • Resources
  • RSS
  • GDPR
  • News in Focus
    • Browse All News
    • Multimedia Gallery
  • Business & Money
    • Auto & Transportation
    • Business Technology
    • Entertain­ment & Media
    • Financial Services & Investing
    • General Business
  • Science & Tech
    • Consumer Technology
    • Energy & Natural Resources
    • Environ­ment
    • Heavy Industry & Manufacturing
    • Telecomm­unications
  • Lifestyle & Health
    • Consumer Products & Retail
    • Entertain­ment & Media
    • Health
    • Sports
    • Travel
  • Policy & Public Interest
  • People & Culture
    • People & Culture
  • Send a Release
  • Sign up
  • Log in
  • Resources
  • RSS
  • GDPR
  • Send a Release
  • Sign up
  • Log in
  • Resources
  • RSS
  • GDPR
  • Send a Release
  • Sign up
  • Log in
  • Resources
  • RSS
  • GDPR

The HHT Foundation International Unveils New Brand Name, Brand Identity
  • USA - English


News provided by

Cure HHT

Aug 05, 2014, 03:00 ET

Share this article

Share toX

Share this article

Share toX

Attendees at the 17th National Patient & Family Conference were the first introduced to the new brand name.
Attendees at the 17th National Patient & Family Conference were the first introduced to the new brand name.

Monkton, Maryland (PRWEB) August 05, 2014 -- The HHT Foundation International has officially launched its new brand name, Cure HHT, along with a new brand identity and evolved message platform. Cure HHT is devoted to finding a cure for HHT disease, providing information and education for patients and physicians, improving access and standards of patient care, advancing treatments and raising awareness about HHT disease.

It is time to shed light on the serious nature of HHT and the devastating impact that can occur if HHT is left undiagnosed and untreated.

Post this

The new Cure HHT brand – the result of a comprehensive rebranding – was first introduced to more than 200 patients, families, medical and scientific professionals at the Foundation’s 17th National Patient & Family Conference on July 18, 2014. Cure HHT represents a significant transformation for the Foundation, one that deepens its resolve in finding the cure for HHT and plays a vital role in helping to expand efforts and reach more people.

The Cornerstone of The HHT Community, the brand’s new tag line, acknowledges the organization’s role within the community and efforts – which are fundamental to ending this disease. Cure HHT is:
• The “trusted” source for people and families affected by HHT to find the latest information, resources to manage their disease and live a full and healthy life.
• Leading the way to deliver better treatments and care by connecting together the medical and scientific communities in lasting partnerships.
• The rally cry of the community, empowering and inspiring people to take action and spread the word and raise awareness about HHT disease.

“During the rebranding process, it became clear that it was essential to change how we talk about ourselves, so that it is immediately apparent that everything we do helps those affected by HHT will have the chance to have a normal life," said Marianne Clancy, Executive Director of Cure HHT. “It is time to shed light on the serious nature of HHT and the devastating impact that can occur if HHT is left undiagnosed and untreated.”

Cure HHT’s efforts today are funding the best HHT research, educating patients and improving access to qualified HHT physicians. Their goal is to transform treatments and perceptions about HHT disease worldwide. Treatments and research on HHT have not kept pace with other diseases. Cystic Fibrosis and ALS, both as common as HHT, take less time to diagnose. People suffering from HHT can wait up to 30 years to receive a diagnosis. “There is an urgent need for new therapies for HHT and for the research to get us there," said Dr. Marie Faughnan, Scientific Research Director for Cure HHT. “People with HHT see this need in their families, Cure HHT joins them to the broader community where they can reach out for help.”

About HHT Disease
HHT is a genetic blood vessel disorder that results in artery vein malformations (AVMs). This disease has hidden effects that can be more severe than people think. Over 1.4 million people have HHT disease, but today 90% of people with HHT are undiagnosed. Unless detected and treated, people are exposed to sudden, possibly disabling and life-threatening events due to bleeding into major organs such as the lungs and brain.

Symptoms of HHT range from mild to severe and often can masquerade as other diseases. Frequent nosebleeds are very common, 90% of people with HHT will develop recurring nosebleeds by age 40. Chronic intestinal bleeding along with nosebleeds results in anemia in 50% of people with HHT. Additionally, 95% of people with HHT develop small red spots, called telangiectasias, on their face, mouth and fingers. It is important for the public and medical professionals to be aware of the signs of HHT. Cure HHT is currently developing online tools to help educate medical professionals and provide patients and families with a new online “Find A Doctor” directory to help dramatically reduce the undiagnosed population.

About Cure HHT
Cure HHT is the only organization devoted to finding a cure for HHT, a potentially devastating disease, affecting 1.4 million people worldwide. With proper diagnosis and treatment, life-threatening complications from HHT can be prevented. The advocate for patients and families, Cure HHT leads the effort to improve the lives of each person affected by HHT. Our comprehensive strategy and efforts help to fund the latest research, educate patients and physicians, improve access and standards of care and elevate the voices of those affected to the national stage. To learn more about HHT disease or to find a certified HHT Center of Excellence near you, visit CureHHT.org. For the latest news and updates, follow us on Twitter and Facebook.

Marianne Clancy, Cure HHT, http://www.CureHHT.org, +1 410-357-9932, [email protected]

Modal title

Contact PRWeb

  • 11AM ET Sunday – 8PM ET Friday
  • Contact Us

About PRWeb

  • About PRWeb
  • Partners
  • Partnership Programs
  • Editorial Guidelines
  • Resources

Why PRWeb

  • Why PRWeb
  • How It Works
  • Who Uses It
  • Pricing

Accounts

  • Create a Free Account
  • Log in
  • Contact Us

Do not sell or share my personal information:

  • Submit via [email protected] 
  • Call Privacy toll-free: 877-297-8921

Contact Cision

Products

About

My Services
  • All News Releases
  • Online Member Center
  • ProfNet
Cision Distribution Helpline
888-776-0942
  • Legal
  • Site Map
  • RSS
  • Cookie Settings
Copyright © 2025 Cision US Inc.