Ehlers-Danlos National Foundation and Dysautonomia International Initiate Webinar Partnership

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The Ehlers-Danlos National Foundation and Dysautonomia International are pleased to announce their first joint event, "Connecting the Dots Between EDS and POTS", a live webinar.

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The Ehlers-Danlos National Foundation and Dysautonomia International are pleased to announce their first joint event, a live webinar on Thursday, October 9, 2014. Connecting the Dots Between EDS and POTS will be streamed live between 8:00 and 10:00 p.m. EDT and feature Peter C. Rowe, MD and Satish R. Raj, MD. The webinar is tailored for patients and family members interested in learning more about EDS and POTS, but all are welcome.

Dr. Peter C. Rowe is a Professor of Pediatrics at Johns Hopkins Children's Center, where he is the inaugural recipient of the Sunshine Natural Wellbeing Foundation Chair in Chronic Fatigue and Related Disorders. A noted researcher and clinician, Dr. Rowe was the first to describe the relationship between chronic fatigue syndrome (CFS) and orthostatic intolerance, as well as the association between Ehlers-Danlos syndrome and orthostatic intolerance.

Dr. Satish R. Raj has spent the last decade studying postural orthostatic tachycardia syndome (POTS), neurocardiogenic syncope (NCS) and other autonomic disorders at Vanderbilt University’s Autonomic Dysfunction Center. He is board certified in Internal Medicine, Cardiology, Clinical Cardiac Electrophysiology, and Autonomic Disorders, and was the recipient of Dysautonomia International’s 2014 Physician of the Year Award. He recently returned to his Canadian roots and accepted a position as an Associate Professor of Cardiovascular Medicine at the University of Calgary, where he is developing a new autonomic lab.

To participate in the webinar live, please register at http://bit.ly/DotsEDSPots. Registrants will receive an access code. After the event, the webinar will be available on EDNF’s YouTube channel (http://bit.ly/EDNFYouTube) and Dysautonomia International's Autonomic Disorders Video Library (https://vimeo.com/dysautonomia).

About Ehlers-Danlos National Foundation (EDNF)
EDNF is the leading authority for Ehlers-Danlos syndrome (EDS), a group of genetic connective tissue disorders. To support research and education about EDS to prevent disfigurement, crippling, and premature death through early and accurate diagnosis, EDNF increases awareness about EDS by fostering and funding research, generating and distributing accurate and responsible information, and delivering recommendations for those seeking diagnosis of problems that have been a life-long mystery. EDNF also provides support to those who have been diagnosed with EDS by offering information and emotional validation for the newly diagnosed wrestling with what a genetic disorder means for them and their families, and provides tips for those who have lived with EDS for years, including day-to-day inspiration and news. EDNF’s members are physicians and other medical practitioners, researchers, people with EDS, and friends. For more information, visit http://www.ednf.org.

About Dysautonomia International
Dysautonomia International is the leading authority on dysautonomia, a group of neurological disorders that impact the autonomic nervous system. Dysautonomia International is a 501(c)(3) non-profit founded by patients, caregivers, physicians and researchers. The organization’s mission is to identify the causes and cures for all forms of dysautonomia and to enhance the quality-of-life of people currently living with these conditions, through research, physician education, public awareness, and patient empowerment programs. For more information, visit http://www.dysautonomiainternational.org.

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