Disease burden and patient reported outcomes among patients with moderate to severe psoriasis: an ethnography study published by Dove Medical Press

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This ethnographic study vividly depicts the unarticulated and emotional impact of psoriasis on the everyday lives of patients and presents an effective method of assessing HRQoL in chronic diseases.

Psoriasis: Targets and Therapy has published the original research “Disease burden and patient reported outcomes among patients with moderate to severe psoriasis: An ethnography study”.

As corresponding author Mr Siva Narayanan says “Our ethnography study is one of the first of its kind in the Psoriasis arena to uncover and describe subtle or less well-defined HRQoL concepts and highlight the voice of the patient and their perception of their disease. As such, we were able to highlight the issues such as patients’ self-isolation, relationships with their partner and family, self-consciousness and anxiety, and the extensive planning and daily routines that are required to cope with everyday life and avoid uncomfortable social situations. We also exposed cultural differences in this study, including differing expression of emotional impacts and (un)willingness/(in)ability to discuss psoriasis with others, which contributes to severe psychosocial burden.”

Mr Narayanan continues “We believe that the findings from our study could aid families, care givers and healthcare providers alike in recognizing the psoriasis disease burden (from patient perspective) and accordingly suggest coping techniques to improve patient HRQoL. Further, our results could inform development and/or refining of PRO instruments in psoriasis.”

As Dr Uwe Wollina, Editor-in-Chief, explains “There are very few investigations on psoriasis available. This paper tries to bridge this gap of knowledge.”

Psoriasis: Targets and Therapy is an international, peer-reviewed, open access journal focusing on psoriasis, nail psoriasis, psoriatic arthritis and related conditions, identification of therapeutic targets and the optimal use of integrated treatment interventions to achieve improved outcomes and quality of life.

Dove Medical Press Ltd is a privately held company specializing in the publication of Open Access peer-reviewed journals across the broad spectrum of science, technology and especially medicine.

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Angela Jones
Dove Medical Press
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